Duffy C M, Tucker L, Burgos-Vargas R
Division of Rheumatology, Montreal Children's Hospital, Quebec, Canada.
J Rheumatol Suppl. 2000 Apr;58:11-4.
In recent years, there has been a tremendous growth in the development of measurement instruments that evaluate health status, functional status, disability, and quality of life in adults with rheumatic diseases. In the past decade, similar measures have been developed for application in children with rheumatic diseases. These include the Childhood Arthritis Impact Measurement Scales (CHAIMS), the Childhood Health Assessment Questionnaire (CHAQ), the Juvenile Arthritis Functional Assessment Report (JAFAR), the Juvenile Arthritis Self-report Index (JASI), the Juvenile Arthritis Quality of Life Questionnaire (JAQQ), and the Childhood Arthritis Health Profile (CAHP). The latter 2 instruments assess health related quality of life (HRQOL) and they are discussed here. The need to adapt this kind of instrument for use in an international climate creates an interesting dilemma and this is discussed.
近年来,用于评估风湿性疾病成人患者健康状况、功能状态、残疾情况及生活质量的测量工具得到了极大发展。在过去十年中,也开发了类似的测量工具用于风湿性疾病儿童。这些工具包括儿童关节炎影响测量量表(CHAIMS)、儿童健康评估问卷(CHAQ)、青少年关节炎功能评估报告(JAFAR)、青少年关节炎自我报告指数(JASI)、青少年关节炎生活质量问卷(JAQQ)以及儿童关节炎健康概况(CAHP)。后两种工具评估健康相关生活质量(HRQOL),本文将对它们进行讨论。将这类工具改编以用于国际环境的需求引发了一个有趣的难题,本文也将对此进行讨论。