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Client perceptions of the impact of genetic counseling: an exploratory study.

作者信息

Veach Patricia McCarthy, Truesdell Sarah E, LeRoy Bonnie S, Bartels Dianne M

出版信息

J Genet Couns. 1999 Aug;8(4):191-216. doi: 10.1023/a:1022946431820.

DOI:10.1023/a:1022946431820
PMID:11658065
Abstract
摘要

相似文献

1
Client perceptions of the impact of genetic counseling: an exploratory study.客户对遗传咨询影响的看法:一项探索性研究。
J Genet Couns. 1999 Aug;8(4):191-216. doi: 10.1023/a:1022946431820.
2
Communication in health professional-lay encounters: how often does each party know what the other wants to discuss?
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3
Provider gender and moral reasoning: the politics of an "ethics of care.提供者的性别与道德推理:“关怀伦理”的政治学
J Genet Couns. 1994 Jun;3(2):95-112. doi: 10.1007/BF01423172.
4
DNA dilemmas: readers and 'experts' weigh in on biomedical ethics.
Sci News. 1994 Dec 17;146(25):408-10.
5
Genetic counseling practices in Germany: a comparison between East German and West German geneticists.德国的遗传咨询实践:东德和西德遗传学家的比较。
J Genet Couns. 1997 Mar;6(1):61-80. doi: 10.1023/a:1025663902714.
6
Genetic risk and reproduction.
Sociol Rev. 1993 Nov;41(4):679-706. doi: 10.1111/j.1467-954x.1993.tb00897.x.
7
Ethical issues in genetic counseling: a comparison of M.S. counselor and medical geneticist perspectives.遗传咨询中的伦理问题:医学遗传咨询师与医学遗传学家观点比较
J Genet Couns. 1992 Mar;1(1):19-30. doi: 10.1007/BF00960081.
8
Gene counsellors say what's 'best.基因顾问会给出最佳建议。
New Sci. 1997 Feb 8;153(2068):7.
9
Providers' gender and moral reasoning: a proposed agenda for research on providers and patients.医疗服务提供者的性别与道德推理:关于医疗服务提供者与患者的研究拟议议程
Fetal Diagn Ther. 1993 Apr;8(Suppl. 1):81-9. doi: 10.1159/000263876.
10
International perspectives on ethics and human genetics.关于伦理与人类遗传学的国际视角
Suffolk Univ Law Rev. 1993 Winter;27(4):1411-56.

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Impact of hereditary pancreatitis on patients and their families.遗传性胰腺炎对患者及其家庭的影响。
J Genet Couns. 2020 Dec;29(6):971-982. doi: 10.1002/jgc4.1221. Epub 2020 Feb 5.
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Elaboration of the Reciprocal-Engagement Model of Genetic Counseling Practice: a Qualitative Investigation of Goals and Strategies.遗传咨询实践的互惠参与模型阐述:目标与策略的定性研究
J Genet Couns. 2017 Dec;26(6):1372-1387. doi: 10.1007/s10897-017-0114-7. Epub 2017 Jun 22.
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Reciprocal Relationships: the Genetic Counselor-Patient Relationship Following a Life-Limiting Prenatal Diagnosis.

本文引用的文献

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Clarifying the goals of nondirective genetic counseling.
Rep Inst Philos Public Policy. 1995 Spring-Summer;15(2-3):1-6.
2
National Society of Genetic Counselors code of ethics.美国国家遗传咨询师协会道德准则。
J Genet Couns. 1992 Mar;1(1):41-3. doi: 10.1007/BF00960083.
3
The resource implications and service outcomes of genetic services in the context of DNA technology.DNA技术背景下基因服务的资源影响及服务成果。
Health Policy. 1994 Jan 15;26(3):171-90. doi: 10.1016/0168-8510(94)90038-8.
相互关系:产前诊断为危及生命疾病后的遗传咨询师与患者关系
J Genet Couns. 2017 Apr;26(2):337-354. doi: 10.1007/s10897-016-0016-0. Epub 2016 Oct 22.
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Effects of Anxiety on Novice Genetic Counseling Students' Experience of Supervised Clinical Rotations.焦虑对新手遗传咨询专业学生临床督导实习体验的影响。
J Genet Couns. 2016 Aug;25(4):742-66. doi: 10.1007/s10897-016-9953-x. Epub 2016 Apr 21.
5
The Client's Perspective of Genetic Counseling-A Grounded Theory Study.客户对遗传咨询的看法——一项扎根理论研究
J Genet Couns. 2001 Aug;10(4):311-29. doi: 10.1023/A:1016677110500.
6
Development of a tiered and binned genetic counseling model for informed consent in the era of multiplex testing for cancer susceptibility.癌症易感性多重检测时代用于知情同意的分层和分箱遗传咨询模型的开发。
Genet Med. 2015 Jun;17(6):485-92. doi: 10.1038/gim.2014.134. Epub 2014 Oct 9.
7
Awareness of genetic counseling and perceptions of its purpose: a survey of the Canadian public.加拿大公众对遗传咨询的认知及其目的的看法:一项调查
J Genet Couns. 2013 Dec;22(6):762-70. doi: 10.1007/s10897-013-9633-z. Epub 2013 Aug 21.
8
Effects of a genetic counseling model on mothers of children with down syndrome: a Brazilian pilot study.遗传咨询模式对唐氏综合征患儿母亲的影响:一项巴西的试点研究。
J Genet Couns. 2013 Dec;22(6):784-94. doi: 10.1007/s10897-013-9619-x. Epub 2013 Jun 23.
9
What counts as effective genetic counselling for presymptomatic testing in late-onset disorders? A study of the consultand's perspective.对于迟发性疾病的症状前检测,什么才算是有效的遗传咨询?一项从咨询者角度开展的研究。
J Genet Couns. 2013 Aug;22(4):437-47. doi: 10.1007/s10897-012-9561-3. Epub 2013 Jan 7.
10
Genetic counseling of adults with Williams syndrome: a first study.成人威廉姆斯综合征的遗传咨询:一项初步研究。
Am J Med Genet C Semin Med Genet. 2010 May 15;154C(2):307-15. doi: 10.1002/ajmg.c.30264.
4
Genetic counseling and testing for breast-ovarian cancer susceptibility: what do women want?乳腺癌-卵巢癌易感性的遗传咨询与检测:女性想要什么?
J Clin Oncol. 1998 Jan;16(1):133-8. doi: 10.1200/JCO.1998.16.1.133.
5
Nondirectiveness in genetic counseling: a survey of practitioners.遗传咨询中的非指导性:从业者调查
Am J Med Genet. 1997 Oct 17;72(2):172-9.
6
Genetic counseling for hereditary cancer: a pilot study on experiences of patients and family members.遗传性癌症的遗传咨询:一项关于患者及家庭成员经历的试点研究。
Patient Educ Couns. 1997 Sep-Oct;32(1-2):107-16. doi: 10.1016/s0738-3991(97)00067-0.
7
Genetic counselling: the psychological impact of meeting patients' expectations.
J Med Genet. 1997 Mar;34(3):237-41. doi: 10.1136/jmg.34.3.237.
8
Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview, and observational study.女性在接受家族性乳腺癌或卵巢癌遗传咨询前对信息的需求:一项问卷调查、访谈及观察性研究。
BMJ. 1997 Jan 25;314(7076):281-3. doi: 10.1136/bmj.314.7076.281.
9
Pre-marital genetic counselling to consanguineous couples: attitudes, beliefs and decisions among counselled, noncounselled and unrelated couples in Israel.对近亲夫妇的婚前遗传咨询:以色列接受咨询、未接受咨询及非近亲夫妇的态度、观念与决定
Soc Sci Med. 1995 Nov;41(9):1301-10. doi: 10.1016/0277-9536(94)00433-t.
10
Reproductive pasts, reproductive futures. Genetic counseling and its effectiveness.
Birth Defects Orig Artic Ser. 1981;17(4):1-192.