Peters Michele, Abu-Saad Huda Huijer, Vydelingum Vasso, Dowson Andrew, Murphy Margaret
European Institute of Health and Medical Sciences, University of Surrey, Surrey, UK.
Scand J Caring Sci. 2004 Sep;18(3):294-303. doi: 10.1111/j.1471-6712.2004.00279.x.
The aim of the study was to gain insight into the patients' perceptions of migraine and chronic daily headache (CDH) management.
Thirteen, semi-structured and individual interviews with seven migraine and five CDH patients were carried out and analysed in QSR NUD*IST5, using a grounded theory methodology.
The participants described using five areas of management: 1) health care use; 2) medication use; 3) alternative therapies; 4) social support; and 5) lifestyle and self-help. The participants described their expectations, preferences, worries and (dis)satisfaction in relation to these five areas of management. The participants adapted headache management to suit their needs and preferences, making migraine and CDH management highly individual and giving the headache patient a central role within their own care.
Health care is changing towards a greater involvement of the patients in their own care. Therefore, it is important to increase understanding of the patients' perspective of chronic diseases, including migraine and CDH. The results from this study inform health care professionals of the range of their patients' needs and preferences. This knowledge can be used to shape clinical practice, to develop patient education programmes and to further research efforts into issues that are important to the headache patient.
本研究旨在深入了解患者对偏头痛和慢性每日头痛（CDH）管理的看法。
对7名偏头痛患者和5名CDH患者进行了13次半结构化的个人访谈，并在QSR NUD*IST5中采用扎根理论方法进行分析。
参与者描述了使用五个管理领域：1）医疗保健利用；2）药物使用；3）替代疗法；4）社会支持；5）生活方式和自助。参与者描述了他们在这五个管理领域的期望、偏好、担忧和（不）满意之处。参与者调整头痛管理以适应他们的需求和偏好，使偏头痛和CDH管理具有高度个性化，并赋予头痛患者在自身护理中的核心角色。
医疗保健正在朝着让患者更多地参与自身护理的方向转变。因此，增加对患者对包括偏头痛和CDH在内的慢性疾病观点的理解非常重要。本研究结果让医疗保健专业人员了解患者的需求和偏好范围。这些知识可用于塑造临床实践、制定患者教育计划以及进一步研究对头痛患者重要的问题。
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