Finlayson Marcia, Van Denend Toni, Hudson Elizabeth
Department of Occupational Therapy, University of Illinois at Chicago, USA.
J Neurosci Nurs. 2004 Oct;36(5):245-51, 259. doi: 10.1097/01376517-200410000-00003.
Although multiple sclerosis (MS) does not typically reduce life expectancy, there has been relatively little systematic investigation of the experiences and health-related concerns of people aging with this disease. A current search of the database CINAHL produced no articles when the search terms "multiple sclerosis," "nursing" and "aging" were used. To initiate more dialogue about the role of nurses in addressing the issues and concerns of people aging with MS, a cross-sectional descriptive study was conducted using both qualitative interviews and the administration of standardized instruments to elicit information about the health concerns and service needs of 27 people with MS 55 years of age and older. Qualitatively, participants perceived that they had less freedom and required more assistance than same age peers who do not have MS. Scores from standardized instruments support these perceptions. Participants expressed unmet needs in the areas of housework, physical therapy, MS support groups, religious service attendance, information and referral, check-in services, assistive technology use, social activities, personal care, and care coordination. To address these perceptions and needs, neuroscience nurses need to be aware of and sensitive to the challenges of aging with MS. In addition, nurses must be prepared to discuss and provide information, resources, and referrals on a wide range of health, social, and wellness-related services.
尽管多发性硬化症(MS)通常不会缩短预期寿命,但对于患有这种疾病的老年人的经历和与健康相关的担忧,系统性调查相对较少。目前在CINAHL数据库中进行搜索时,使用“多发性硬化症”“护理”和“老龄化”等搜索词未找到相关文章。为了引发更多关于护士在解决患有MS的老年人问题和担忧方面作用的讨论,开展了一项横断面描述性研究,采用定性访谈和标准化工具的使用,以获取27名55岁及以上MS患者的健康担忧和服务需求信息。从定性角度来看,参与者认为与没有MS的同龄人相比,他们的自由更少,需要更多帮助。标准化工具的得分支持了这些看法。参与者表示在家务、物理治疗、MS支持小组、宗教服务参与、信息与转诊、报到服务、辅助技术使用、社交活动、个人护理和护理协调等方面存在未满足的需求。为了应对这些看法和需求,神经科学护士需要了解并敏感地认识到患有MS的老年人面临的挑战。此外,护士必须准备好讨论并提供有关广泛的健康、社会和健康相关服务的信息、资源和转诊。