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[关于阿尔茨海默病诊断的披露]

[On the disclosure of the diagnosis of Alzheimer's disease].

作者信息

Selmès Jacques, Derouesné Christian

机构信息

Fondation Alzheimer Espagne, Madrid.

出版信息

Psychol Neuropsychiatr Vieil. 2004 Jun;2(2):133-40.

Abstract

In contrast to the legal or professional instructions, many French or European physicians remain reluctant for disclosing the diagnosis of Alzheimer's disease to their patients. The reasons put forward for not telling the truth appear to be no more justified. The wish to protect the patient from negative reactions as well as the argument that the patient is not able to understand the significance of the diagnosis are not clinically grounded. Moreover, the situation is presently modified by new circumstances: the early diagnosis of the illness in most cases and the availability of active drugs and support measures. Therefore, it appears necessary to more deeply understand the difficulties met by the patient, the family but also by the physician in the process of disclosure of the diagnosis of Alzheimer's disease. In this purpose, some practical suggestions are presented to facilitate the dynamic of the communication between physician, patient and family.

摘要

与法律或专业指导意见不同的是,许多法国或欧洲的医生仍然不愿意向患者透露阿尔茨海默病的诊断结果。提出不告知真相的理由似乎并不更合理。想要保护患者免受负面反应的影响,以及认为患者无法理解诊断意义的观点,在临床上都没有依据。此外,目前情况因新的因素而有所改变:大多数情况下疾病的早期诊断以及有了有效的药物和支持措施。因此,似乎有必要更深入地了解患者、其家人以及医生在透露阿尔茨海默病诊断过程中所遇到的困难。为此,提出了一些实用建议,以促进医生、患者和家人之间沟通的动态过程。

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