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为患有危及生命疾病的人提供支持性情感团体体验:减轻临终患者的精神、心理和与死亡相关的痛苦。

Supportive-affective group experience for persons with life-threatening illness: reducing spiritual, psychological, and death-related distress in dying patients.

作者信息

Miller Douglas K, Chibnall John T, Videen Susan D, Duckro Paul N

机构信息

Center for Aging Research, Indiana University School of medicine, 1050 Wishard Boulevard RG-6, Indianapolis, IN 46202, USA.

出版信息

J Palliat Med. 2005 Apr;8(2):333-43. doi: 10.1089/jpm.2005.8.333.

Abstract

BACKGROUND

Attention to psycho-socio-spiritual needs is considered critical by patients with life-threatening illnesses and their caregivers. Palliative care interventions that address these needs--particularly spirituality--are lacking.

OBJECTIVE

To evaluate the effects of an innovative program to address psycho-socio-spiritual needs in patients with life-threatening illnesses.

DESIGN

A group intervention entitled Life-Threatening Illness Supportive-Affective Group Experience (LTI-SAGE) was developed for reducing patient spiritual, emotional, and death-related distress.

SETTING/SUBJECTS: African American and Caucasian patients (n = 69) from two hospitals in St. Louis, Missouri, with life-threatening medical conditions (cancer; human immunodeficiency virus/acquired immune deficiency syndrome [HIV/AIDS]; geriatric frailty; liver, kidney, pulmonary, or cardiovascular disease) were randomly assigned to intervention or control groups. Intervention patients participated in a maximum of 12 LTI-SAGE groups over a 12-month period. Control patients received standard care.

MEASUREMENTS

Outcome measures were depression symptoms, anxiety, spiritual well-being, and death-related emotional distress.

RESULTS

After attrition, 51 (73.9%) patients completed the trial. At the end of the trial, after factoring in compliance, intervention patients had significantly fewer depression symptoms and death-related feelings of meaninglessness and significantly better spiritual well-being than did control patients.

CONCLUSIONS

The use of the LTI-SAGE model for enhancing the end-of-life illness experience is promising.

摘要

背景

患有危及生命疾病的患者及其护理人员认为关注心理-社会-精神需求至关重要。然而,针对这些需求——尤其是精神需求——的姑息治疗干预措施却很匮乏。

目的

评估一项创新项目对患有危及生命疾病患者的心理-社会-精神需求的影响。

设计

开发了一项名为“危及生命疾病支持性情感团体体验”(LTI-SAGE)的团体干预措施,以减轻患者的精神、情感及与死亡相关的痛苦。

设置/受试者:来自密苏里州圣路易斯市两家医院的69名非裔美国人和白人患者,患有危及生命的疾病(癌症;人类免疫缺陷病毒/获得性免疫缺陷综合征[HIV/AIDS];老年虚弱;肝脏、肾脏、肺部或心血管疾病),被随机分配到干预组或对照组。干预组患者在12个月内最多参加12次LTI-SAGE团体活动。对照组患者接受标准护理。

测量

结果指标包括抑郁症状、焦虑、精神幸福感以及与死亡相关的情感痛苦。

结果

剔除失访者后,51名(73.9%)患者完成了试验。在试验结束时,考虑到依从性因素,干预组患者的抑郁症状以及与死亡相关的无意义感显著少于对照组患者,精神幸福感也显著优于对照组患者。

结论

使用LTI-SAGE模型来改善临终疾病体验前景良好。

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