Ward-Griffin Catherine, Schofield Ruth, Vos Sandra, Coatsworth-Puspoky Robin
School of Nursing, Faculty of Health Sciences, University of Western Ontario, London, Ontario N6A 5C1, Canada.
J Fam Nurs. 2005 May;11(2):140-61. doi: 10.1177/1074840705275464.
The purpose of this qualitative, descriptive study was to explore the perspectives of individuals who were caring for a family member with a mental illness, with particular attention to housing, quality of supports, and formal care services. Eleven focus groups with family caregivers (N = 75) were conducted. Both individual and team thematic analyses were undertaken until interpretations of the experiences of the participants were inductively developed and conceptualized into a holistic interpretation. Findings revealed that family caregivers were part of a "circle of care," supporting the independence of the individual with mental illness while attempting to protect their family member with mental illness. However, findings suggested that this circle of care led to a "vicious cycle" of caregiving. Three major themes were identified: witnessing inadequacies, working behind the scenes, and creating a better world. Health-promoting family nursing practice and policy implications, as well as areas for further research, are discussed.
这项质性描述性研究的目的是探讨照顾患有精神疾病家庭成员的个体的观点,特别关注住房、支持质量和正规护理服务。对11个有家庭照顾者参与的焦点小组(N = 75)进行了研究。开展了个体和团队主题分析,直到对参与者的经历进行归纳性阐释,并将其概念化为一种整体解释。研究结果显示,家庭照顾者是“护理圈”的一部分,在支持患有精神疾病个体独立性的同时,试图保护其患有精神疾病的家庭成员。然而,研究结果表明,这个护理圈导致了护理的“恶性循环”。确定了三个主要主题:目睹不足、幕后工作和创造更美好的世界。讨论了促进健康的家庭护理实践和政策意义以及进一步研究的领域。