Grillo Marianne, Gassner Lee, Marshman Gillian, Dunn Sandra, Hudson Pamela
Dermatology Unit, Flinders Medical Centre, Bedford Park, SA, Australia.
Pediatr Dermatol. 2006 Sep-Oct;23(5):428-36. doi: 10.1111/j.1525-1470.2006.00277.x.
Patient education has been regarded as having a key role in the self-management of atopic eczema. However, the relationship between the educational interventions and clinical outcomes including severity of eczema, quality of life, and family impact has not been rigorously examined. The purpose of this longitudinal randomized controlled study was to evaluate the impact of an intensive education program with a focus on dermatology and immunology designed for parents and children diagnosed with atopic eczema. The intention of this study was not to change treatment regimes prescribed by the patient's physician. The Scoring Atopic Dermatitis rating system was used for assessment of disease impact, and the impact on quality of life was quantified by using the Children's Dermatology Life Quality Index, Infants' Dermatology Quality of Life Index, and Dermatitis Family Impact. A total of 61 pediatric patients (0-16 years) diagnosed with atopic eczema from the metropolitan area of Adelaide were randomized to either the control or intervention group. Results of the study showed that the intervention group had a significant improvement in the scoring atopic dermatitis measure when compared to the control group at week 4 and week 12. Quality of life measures did not significantly improve with decreased severity of eczema except in the group of children aged 5-16 years which, despite small numbers, showed a significant improvement in quality of life scores. These findings suggest that education provides an important role in decreasing the severity of eczema.
患者教育被认为在特应性皮炎的自我管理中起着关键作用。然而，教育干预与包括湿疹严重程度、生活质量和家庭影响在内的临床结果之间的关系尚未得到严格检验。这项纵向随机对照研究的目的是评估一项针对诊断为特应性皮炎的父母和儿童设计的、以皮肤科和免疫学为重点的强化教育项目的影响。本研究的目的不是改变患者医生规定的治疗方案。采用特应性皮炎评分系统评估疾病影响，并使用儿童皮肤病生活质量指数、婴儿皮肤病生活质量指数和皮炎家庭影响量表对生活质量的影响进行量化。共有61名来自阿德莱德大都市区、诊断为特应性皮炎的儿科患者（0至16岁）被随机分为对照组或干预组。研究结果表明，与对照组相比，干预组在第4周和第12周时特应性皮炎评分有显著改善。除了5至16岁的儿童组外，湿疹严重程度降低时生活质量指标并未显著改善，尽管该组人数较少，但生活质量得分有显著提高。这些发现表明，教育在降低湿疹严重程度方面发挥着重要作用。
