炎症性肠病患儿及青少年面临的挑战与策略：一项定性研究
Challenges and strategies of children and adolescents with inflammatory bowel disease: a qualitative examination.
作者信息
Nicholas David B, Otley Anthony, Smith Claire, Avolio Julie, Munk Marla, Griffiths Anne M
机构信息
The Hospital for Sick Children, Toronto, Ontario, Canada.
出版信息
Health Qual Life Outcomes. 2007 May 25;5:28. doi: 10.1186/1477-7525-5-28.
BACKGROUND
The aims of this study were to understand the lived experience and elements of quality of life as depicted by children and adolescents with inflammatory bowel disease (IBD).
METHODS
Eighty participants with IBD, ranging in age from 7 to 19 years, were interviewed about the impact of IBD on their daily lives.
RESULTS
Findings demonstrated that IBD profoundly affects children and adolescents. These young patients experience concerns and discomfort as a result of IBD symptoms and treatments. They commonly feel, in varying degrees, a sense of vulnerability and diminished control over their lives and future, and perceive themselves as "different" from healthy peers and siblings. Despite these negative impacts, participants also described effective means of coping with IBD, and reported that support from family members and friends contributes to coping. A positive attitude and other strategies were also described as strengths contributing to quality of life.
CONCLUSION
Clinical assessments need to consider the experiences and perceptions of children as they manage their IBD. Implications for clinical practice are discussed.
背景
本研究旨在了解炎症性肠病（IBD）患儿及青少年所描述的生活体验和生活质量要素。
方法
对80名年龄在7至19岁之间的IBD患者进行了访谈，询问IBD对他们日常生活的影响。
结果
研究结果表明，IBD对儿童和青少年有深远影响。这些年轻患者因IBD症状和治疗而经历担忧和不适。他们通常在不同程度上感到脆弱，对自己的生活和未来的掌控感减弱，并认为自己与健康的同龄人和兄弟姐妹“不同”。尽管有这些负面影响，但参与者也描述了应对IBD的有效方法，并报告说家人和朋友的支持有助于应对。积极的态度和其他策略也被描述为有助于提高生活质量的优势。
结论
临床评估需要考虑儿童在管理IBD时的经历和看法。文中讨论了对临床实践的启示。
Zotero 插件