Penson Richard T, Gu Fei, Harris Susan, Thiel Mary Martha, Lawton Nat, Fuller Arlan F, Lynch Thomas J
Department of Medicine, Division of Hematology-Oncology, Massachusetts General Hospital, Yawkey 9066, 55 Fruit Street, Boston, Massachusetts 02114-2617, USA.
Oncologist. 2007 Sep;12(9):1105-13. doi: 10.1634/theoncologist.12-9-1105.
Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital (MGH), founded The Kenneth B. Schwartz Center at MGH. The Schwartz Center is a nonprofit organization dedicated to supporting and advancing compassionate health care delivery that provides hope to the patient, support to caregivers, and encourages the healing process. The Center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members. A patient with recurrent ovarian cancer, now in a 12-year remission after recurrence, and her surgeon, discussed their experiences and feelings around the hopes and fears of cancer and its treatment. Hope sustains many through dark times, and is at the core of the wonderful resilience of many who wrestle with cancer. Concerns about false hope, unrealistic expectations, assumptions, engaging in realistic hopefulness, and the joys and stresses embodied in hope and how they frame the caregiver-patient relationship are discussed. The literature and limited evidence base are reviewed.
1995年,马萨诸塞州总医院(MGH)的癌症患者肯尼斯·B·施瓦茨在去世前不久,在MGH创立了肯尼斯·B·施瓦茨中心。施瓦茨中心是一个非营利组织,致力于支持和推进富有同情心的医疗服务,为患者提供希望,为护理人员提供支持,并促进康复进程。该中心主办施瓦茨中心座谈会,这是一个每月举行的多学科论坛,护理人员在此反思患者、其家人和护理人员所面临的重要心理社会问题,并从其他工作人员那里获得见解和支持。一位复发性卵巢癌患者,复发后已缓解12年,她与她的外科医生讨论了他们在癌症及其治疗的希望和恐惧方面的经历和感受。希望支撑着许多人度过黑暗时期,是许多与癌症抗争的人强大复原力的核心。文中讨论了对虚假希望、不切实际的期望、假设、保持现实的希望以及希望所包含的喜悦和压力,以及它们如何构建护理人员与患者的关系等问题。同时对相关文献和有限的证据基础进行了综述。