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“让我变得正常”:主流中学中患有自闭症谱系障碍学生的观点与经历

'Make me normal': the views and experiences of pupils on the autistic spectrum in mainstream secondary schools.

作者信息

Humphrey Neil, Lewis Sarah

机构信息

University of Manchester, UK.

出版信息

Autism. 2008 Jan;12(1):23-46. doi: 10.1177/1362361307085267.

Abstract

Facilitating the learning and participation of pupils with Asperger syndrome and high-functioning autism (herein referred to as AS) in mainstream schools is complex and poorly understood. We report on a small-scale qualitative study of the views and experiences of 20 such pupils drawn from four secondary schools in north-west England. Data were collected through semi-structured interviews and pupil diaries. Interpretive phenomenological analysis was used to explore how pupils with AS make sense of their educational experiences. The central theme was how participants constructed their understanding of what their AS meant to them. This was often characterized by negative perceptions of their differences, such as being 'retarded' or having a 'bad brain'. The links between this understanding and reported difficulties with peers and teachers, the desire to 'fit in', and other themes are discussed. The implications of these findings for policy and practice in this area are also presented.

摘要

促进患有阿斯伯格综合征和高功能自闭症(以下简称AS)的学生在主流学校的学习和参与是复杂的,且鲜为人知。我们报告了一项小规模的定性研究,该研究涉及从英格兰西北部四所中学抽取的20名此类学生的观点和经历。数据通过半结构化访谈和学生日记收集。采用解释现象学分析来探究患有AS的学生如何理解他们的教育经历。核心主题是参与者如何构建他们对AS对自身意义的理解。这通常表现为对自身差异的负面认知,比如被认为“智力迟钝”或“脑子不好”。本文还讨论了这种理解与所报告的与同伴和教师相处困难、“融入”的愿望以及其他主题之间的联系。同时也阐述了这些研究结果对该领域政策和实践的启示。

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