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炎症性肠病患者的自我管理

Self-management for people with inflammatory bowel disease.

作者信息

Saibil F, Lai E, Hayward A, Yip J, Gilbert C

机构信息

Division of Gastroenterology, Department of Medicine, Sunnybrook Health Sciences Centre, University of Toronto, Canada.

出版信息

Can J Gastroenterol. 2008 Mar;22(3):281-7. doi: 10.1155/2008/428967.

Abstract

In North America and the United Kingdom, we are in the age of self-management. Many patients with chronic diseases are ready to participate in the therapeutic decision-making process, and join their physicians in a co-management model. It is particularly useful to consider this concept at a time when physician shortages and waiting times are on the front page every day, with no immediate prospect of relief. Conditions such as diabetes, asthma, chronic obstructive pulmonary disease, recurrent urinary tract infections and others lend themselves to this paradigm of medical care for the informed patient. The present paper reviews some of the literature on self-management for the patient with inflammatory bowel disease (IBD), and provides a framework for the use of self-management in the IBD population, with emphasis on the concept of a patient passport, and the use of e-mail, supported by an e-mail contract, as proposed by the Canadian Medical Protective Association. Examples of specific management strategies are provided for several different IBD scenarios. Eliminating the need for some office visits has clear environmental and economical benefits. Potential negative consequences of this form of patient care are also discussed.

摘要

在北美和英国,我们正处于自我管理的时代。许多慢性病患者愿意参与治疗决策过程,并与医生采用共同管理模式。在医生短缺和候诊时间每天都成为头条新闻且短期内看不到缓解希望的当下,考虑这一概念尤为有用。糖尿病、哮喘、慢性阻塞性肺疾病、复发性尿路感染等病症适合为有见识的患者采用这种医疗护理模式。本文回顾了一些关于炎症性肠病(IBD)患者自我管理的文献,并为IBD人群使用自我管理提供了一个框架,重点介绍了患者护照的概念,以及如加拿大医学保护协会所提议的,在电子邮件合同支持下使用电子邮件的方法。针对几种不同的IBD情况提供了具体管理策略的示例。减少一些门诊就诊需求具有明显的环境和经济效益。本文还讨论了这种患者护理形式可能产生的负面后果。

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