德国银屑病护理质量——2007年全国性研究PsoHealth的结果

Quality of psoriasis care in Germany--results of the national study PsoHealth 2007.

作者信息

Augustin Matthias, Reich Kristian, Reich Christine, Purwins Sandra, Jeff Rustenbach Stephan, Schäfer Ines, Radtke Marc

机构信息

CVderm, Department of Dermatology and Venereology, University Clinics Hamburg-Eppendorf, Germany.

出版信息

J Dtsch Dermatol Ges. 2008 Aug;6(8):640-5. doi: 10.1111/j.1610-0387.2008.06807.x.

DOI:10.1111/j.1610-0387.2008.06807.x

PMID:18801145

Abstract

BACKGROUND

Many different forms of treatment are available for psoriasis. The German standard is the national AWMF S3 guideline. A national survey on psoriasis care in 2005 indicated deficits in psoriasis care in Germany.

AIM

Assessment of the health care situation of patients with psoriasis in Germany.

METHODS

Nation-wide cross-sectional study, in 142 dermatological practices and clinics. The following data were documented: a) Doctor Questionnaire: Treatment, illnesses, clinical characteristics and severity (PASI). b) Patient Questionnaire: Quality of life (QoL), patient relevant therapeutic benefits and satisfaction with the quality of the care. A panel of experts developed and analyzed 8 criteria as indicators of the quality of care.

RESULTS

Of the 2009 evaluated patients, 11.6% suffered from severe psoriasis (PASI > 20) and 27.4% from moderate psoriasis (PASI 10-20). The average PASI value was 10.1, and the DLQI 7.5. 32.2% of patients had a serious reduction in their QoL (DLQI > 10). The share of patients with preceding systemic therapy was 47.3%, in severe psoriasis 62.1%, while 20.1% of the patients had received inpatient treatment. The average number of days absent from work was 3.4. Compared to 2005, all 8 indicators improved.

CONCLUSION

Significant numbers of psoriasis patients show serious quality of life reductions and high grades of clinical severity. In comparison to 2005, there has been a notable, nation-wide improvement in psoriasis care.

摘要

背景

银屑病有多种不同的治疗方式。德国的标准是国家 AWMF S3 指南。2005 年一项关于银屑病护理的全国性调查显示德国在银屑病护理方面存在不足。

目的

评估德国银屑病患者的医疗状况。

方法

在 142 家皮肤科诊所和诊疗所进行全国性横断面研究。记录了以下数据：a）医生问卷：治疗、疾病、临床特征和严重程度（银屑病面积和严重程度指数 [PASI]）。b）患者问卷：生活质量（QoL）、与患者相关的治疗益处以及对护理质量的满意度。一个专家小组制定并分析了 8 项标准作为护理质量指标。

结果

在 2009 名接受评估的患者中，11.6%患有重度银屑病（PASI > 20），27.4%患有中度银屑病（PASI 10 - 20）。PASI 的平均值为 10.1，皮肤病生活质量指数（DLQI）为 7.5。32.2%的患者生活质量严重下降（DLQI > 10）。先前接受过全身治疗的患者比例为 47.3%，重度银屑病患者中这一比例为 62.1%，而 20.1%的患者接受过住院治疗。平均缺勤天数为 3.4 天。与 2005 年相比，所有 8 项指标均有所改善。