Krokavcova M, Nagyova I, van Dijk J P, Rosenberger J, Gavelova M, Middel B, Gdovinova Z, Groothoff J W
Department of Neurology, Faculty of Medicine, PJ Safarik University, Kosice, Slovakia.
Eur J Neurol. 2008 Nov;15(11):1237-44. doi: 10.1111/j.1468-1331.2008.02304.x.
Multiple sclerosis (MS) is a chronic disease that is difficult to predict and to cope with. Mastery refers to the extent to which patients see themselves as being in control of the forces that affect their lives. It may play an important role in perceived health status and well-being. The purpose of this study was to clarify whether mastery is associated with functional disability and perceived health status in MS patients and how such an association might function.
Two hundred and three MS patients completed the Short-Form-36 Health Survey as well as the Pearlin-Schooler Mastery Scale. Functional disability was assessed using the Kurtzke Expanded Disability Status Scale. Hierarchical multiple linear regression analyses were performed on the data from two MS age groups: <45 and > or =45 years of age.
Functional disability was negatively associated with perceived physical health status in both age groups and with perceived mental health status in younger age group. Mastery was positively associated with perceived health status in older age group.
The findings confirm that mastery might be helpful for older MS patients. Education strategies for MS patients aimed at personal empowerment for the maintaining of physical and mental well-being may be important.
多发性硬化症(MS)是一种难以预测和应对的慢性疾病。掌控感是指患者认为自己能够掌控影响其生活的各种力量的程度。它可能在感知健康状况和幸福感方面发挥重要作用。本研究的目的是阐明掌控感是否与MS患者的功能残疾及感知健康状况相关,以及这种关联可能如何发挥作用。
203名MS患者完成了简短健康调查问卷(Short-Form-36 Health Survey)以及皮尔林-斯库勒掌控感量表(Pearlin-Schooler Mastery Scale)。使用库茨克扩展残疾状态量表(Kurtzke Expanded Disability Status Scale)评估功能残疾情况。对两个MS年龄组的数据进行分层多元线性回归分析:年龄<45岁和年龄≥45岁。
在两个年龄组中,功能残疾与感知身体健康状况均呈负相关,在较年轻年龄组中与感知心理健康状况也呈负相关。在年龄较大的组中,掌控感与感知健康状况呈正相关。
研究结果证实掌控感可能对老年MS患者有益。针对MS患者旨在增强个人能力以维持身心健康的教育策略可能很重要。