Dodor Emmanuel Atsu, Kelly Shona
Division of Epidemiology and Public Health, Queens Medical Centre, University of Nottingham, Nottingham, UK.
Psychol Health Med. 2009 Mar;14(2):170-9. doi: 10.1080/13548500802199753.
One major set back to the success of TB control globally is the stigma attached to the disease in most societies. This article explores community's understanding of, and attitudes and behaviours towards TB and examines the implications for disease control efforts. Individual in-depth interviews and focus groups were held with community members and the generated data analysed using Grounded Theory techniques and procedures. At the core of feelings towards TB in the community is the fear of infection leading to imposition of socio-physical distance and participatory restrictions on those suffering from the disease. Because of fear of infection, most of the community members were of the view that TB patients should not be part of the society and said they will not marry a TB patient or encourage any family member to enter such a relationship. They also pointed out that TB patients should not sell in the community and would not be allowed to represent them at any public function because they can infect others. Whenever it becomes unavoidable for the community members to interact with someone with TB, they indicated that they would cover their mouth with a handkerchief, turn their head or sit in the opposite direction of the wind from the TB patient to avoid inhaling the air. When a TB patient joins the community members at any function, he/she is expected to abide by certain 'codes of conduct'. The stigmatising attitudes and behaviours of the community members towards the disease and its sufferers may lead individuals with very obvious signs and symptoms of TB to attribute it to other non-stigmatising conditions or hide the diagnosis from others as well as default from treatment.
全球结核病控制取得成功的一个主要障碍是在大多数社会中该病所附带的污名。本文探讨了社区对结核病的理解、态度和行为,并审视了其对疾病控制工作的影响。对社区成员进行了个人深度访谈和焦点小组访谈,并运用扎根理论技术和程序对所生成的数据进行了分析。社区对结核病的感受核心在于对感染的恐惧,这导致对结核病患者实施社会和身体距离限制以及参与限制。由于对感染的恐惧,大多数社区成员认为结核病患者不应融入社会,并表示他们不会与结核病患者结婚,也不会鼓励任何家庭成员建立这种关系。他们还指出,结核病患者不应在社区中售卖物品,并且在任何公共活动中都不会被允许代表社区,因为他们会传染他人。每当社区成员不可避免地要与结核病患者互动时,他们表示会用手帕捂住嘴、扭头或者坐在与结核病患者风向相反的方向,以避免吸入空气。当结核病患者在任何活动中与社区成员在一起时,他/她需要遵守某些“行为准则”。社区成员对该病及其患者的污名化态度和行为可能会导致有明显结核病体征和症状的个体将其归因于其他无污名化的病症,或者向他人隐瞒诊断情况以及不接受治疗。