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社会支持与智力残疾:成年智力残疾者与身体残疾者社交网络的比较。

Social support and intellectual disabilities: a comparison between social networks of adults with intellectual disability and those with physical disability.

作者信息

Lippold T, Burns J

机构信息

Surrey and Borders Partnership NHS Foundation Trust, Greenlaws, Guildford, Surrey, UK.

出版信息

J Intellect Disabil Res. 2009 May;53(5):463-73. doi: 10.1111/j.1365-2788.2009.01170.x. Epub 2009 Mar 19.

Abstract

BACKGROUND

Social support has been identified as a major protective factor in preventing mental health problems and also as a major contributor to quality of life. People with intellectual disabilities (ID) have been identified as having limited social support structures. Interventions have been focused on promoting their social presence and integration. However, previous studies have shown that this does not always lead to the formation of social relationships. To date few studies have looked at how having an ID leads to impoverished social networks. This study aimed to do this by contrasting the social relationships of people with physical disabilities (PD) and people with ID.

METHODS

Two groups of participants were recruited; 30 people with mild ID and 17 people with PD. Social and functional support networks were assessed, in addition to life experiences. Between and within group differences were then explored statistically.

RESULTS

Adults with ID had more restricted social networks than PD, despite being involved in more activities. Social support for adults with ID was mainly provided by family and carers and few relationships with non-disabled people were identified. In contrast adults with PD had larger social networks than had been reported in the mainstream literature and had a balance of relationships with disabled and non-disabled people.

CONCLUSIONS

The results suggest that there are additional processes attached to having an ID, which lead to continued impoverished lifestyles. The findings also endorse other work that suggests being physically integrated and engaged in a wide range of activities does not guarantee good social and emotional support.

摘要

背景

社会支持已被确定为预防心理健康问题的主要保护因素,也是生活质量的主要贡献因素。智障人士的社会支持结构有限。干预措施一直侧重于促进他们的社会参与和融入。然而,先前的研究表明,这并不总是能导致社会关系的形成。迄今为止,很少有研究探讨智障如何导致社会网络匮乏。本研究旨在通过对比身体残疾者(PD)和智障人士的社会关系来进行此项研究。

方法

招募了两组参与者;30名轻度智障人士和17名身体残疾者。除了生活经历外,还评估了社会和功能支持网络。然后对组间和组内差异进行统计学探索。

结果

尽管智障成年人参与的活动更多,但他们的社会网络比身体残疾者更受限。智障成年人的社会支持主要由家人和照顾者提供,与非残疾人的关系很少。相比之下,身体残疾的成年人的社会网络比主流文献报道的更大,并且与残疾人和非残疾人的关系保持平衡。

结论

结果表明,智障还存在其他相关过程,这些过程导致生活方式持续匮乏。研究结果还支持了其他研究,即身体融入并参与广泛活动并不能保证获得良好的社会和情感支持。

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