Kallergis G
Department of Mental Health and Behavioral Sciences, School of Health, University of Athens, Athens, Greece.
J BUON. 2009 Jan-Mar;14(1):109-14.
One of the questions the therapist poses himself while informing a patient is: whom shall I inform about the diagnosis, treatment and prognosis? If we unconditionally accepted the view that information belongs to the patient from an ethical and legal standpoint, we would automatically exclude the partner and the family. Therefore, the therapist should raise another question: what is the benefit to the patient? To answer the question and the resulting dilemma, we have to leverage the long experience of family therapy and tailor it to the cases we are dealing with. It should be taken into consideration that patient and family are a dynamic system which was balanced before the onset of the disease, but is now disrupted, entering into crisis. Therefore, denial mechanism and personality characteristics we have previously elaborated on, and communication among members play a crucial role in determining the information strategy and the way family should be approached. The steps to approach the patient - family are: 1) Firstly, we evaluate the patient's degree of denial and personality characteristics. Then we receive information about the patient's family so that we can have a rough idea about intrafamily dynamics. 2) Then we gather information from the nurses about the family atmosphere: simple information about the patient's and relatives' relationship like who comes to the hospital, who shows interest in the patient, whether someone is being quarrelsome or not are crucial to assess the dynamics of their relationships. 3) We summon patient and family members in our office. 4) We decide on the steps to inform the patient, and we apply them. Involving family members with the patient seems to improve the results of information and forge concession and therapeutic alliance, which are necessary parameters in the therapeutic follow-up. Usually, doctors and nurses approach patient and family using their experience. Therefore, we need a training that will equip health professionals with the necessary knowledge to approach the family.
我应该把诊断、治疗和预后情况告知给谁?如果我们从伦理和法律角度无条件地接受信息属于患者个人的观点,那我们就会自动排除其伴侣和家人。因此,治疗师应该提出另一个问题:这对患者有什么好处?为了回答这个问题以及由此产生的困境,我们必须借鉴家庭治疗的长期经验,并根据我们所处理的案例进行调整。应该考虑到患者和家庭是一个动态系统,在疾病发作前处于平衡状态,但现在被打乱,陷入了危机。因此,我们之前阐述过的否认机制和个性特征,以及家庭成员之间的沟通,在确定信息策略和与家庭沟通的方式方面起着至关重要的作用。与患者 - 家庭沟通的步骤如下:1)首先,我们评估患者的否认程度和个性特征。然后我们了解患者家庭的情况,以便对家庭内部动态有一个大致的了解。2)接着我们从护士那里收集有关家庭氛围的信息:关于患者与亲属关系的简单信息,比如谁来医院、谁对患者表现出关心、是否有人爱争吵等,对于评估他们关系的动态至关重要。3)我们把患者和家庭成员召集到我们的办公室。4)我们决定告知患者的步骤,并付诸实施。让家庭成员参与到对患者的告知中,似乎能提高告知的效果,并形成妥协和治疗联盟,这是治疗后续过程中必不可少的因素。通常,医生和护士凭借经验与患者及家庭沟通。因此,我们需要一项培训,让卫生专业人员具备与家庭沟通所需的知识。