Center for Psycho-Oncology and Palliative Care Research, Dana-Farber Cancer Institute, Boston, Massachusetts 02114, USA.
J Health Commun. 2009;14 Suppl 1(0 1):95-108. doi: 10.1080/10810730902806786.
Concerns have been raised about the quality of life and health care received by cancer patients at the end of life (EOL). Many patients die with pain and other distressing symptoms inadequately controlled, receiving burdensome, aggressive care that worsens quality of life and limits patient exposure to palliative care, such as hospice. Patient-physician communication is likely a very important determinate of EOL care. Discussions of EOL with physicians are associated with an increased likelihood of the following (1) acknowledgment of terminal illness, (2) preferences for comfort care over life extension, and (3) receipt of less intensive, life-prolonging and more palliative EOL care; while this appears to hold for White patients, it is less clear for Black, advanced cancer patients. These results highlight the importance of communication in determining EOL cancer care and suggest that communication disparities may contribute to Black-White differences in EOL care. We review the pertinent literature and discuss areas for future research.
人们对癌症终末期患者的生活质量和医疗保健提出了担忧。许多患者临终时仍承受着疼痛和其他痛苦症状的折磨,接受着负担沉重、激进的治疗,这不仅降低了生活质量,还限制了患者接受姑息治疗(如临终关怀)的机会。医患沟通很可能是终末期护理的一个非常重要的决定因素。与医生进行终末期讨论与以下情况的可能性增加有关:(1)承认绝症,(2)选择舒适护理而非延长生命,以及(3)接受不那么密集、延长生命和更姑息性的终末期护理;虽然这些结果似乎适用于白人患者,但对于晚期黑人癌症患者来说,情况就不那么清楚了。这些结果强调了沟通在确定终末期癌症护理方面的重要性,并表明沟通差异可能导致终末期护理中黑人和白人之间的差异。我们回顾了相关文献,并讨论了未来研究的领域。