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重病患者对准备和生命终结的讨论:一种协助生命末期过渡的干预措施。

Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life.

机构信息

Center for Health Services Research in Primary Care, Durham VA Medical Center, Durham, North Carolina, USA.

出版信息

Palliat Support Care. 2009 Dec;7(4):393-404. doi: 10.1017/S147895150999040X.

Abstract

OBJECTIVE

Patients approaching the end of life not only face challenges to physical well-being but also threats to emotional and spiritual integrity. Yet, identifying appropriate, effective, and brief interventions to address those concerns has proven elusive. We developed an intervention based on life review and emotional disclosure literatures and conducted a pilot study to determine feasibility and acceptability. This article presents qualitative intervention responses.

METHOD

We conducted a three-armed randomized control trial to evaluate the effects of preparation and life completion discussion on health outcomes in patients with advanced serious illness. Hospice-eligible subjects were randomly assigned to one of three groups: (1) intervention (life completion discussion intervention), (2) attention control (relaxation meditation), and control (no intervention). Subjects in the intervention arm met with a facilitator three times. Session 1 focused on life story, Session 2 on forgiveness, and Session 3, on heritage and legacy.

RESULTS

Eighteen subjects participated in the pilot intervention interviews. Subjects from a range of socioeconomic backgrounds completed the intervention with equal facility. Results from Session 1 demonstrate narrative responses participants gave as they reconnected with previous life roles, values, and accomplishments. The second session illustrated reflections of choices one might have made differently and exploration of forgiveness offered and sought. Content from the first and second sessions laid the foundation for discussing Session 3's lessons learned and heritage and legacy. Responses are summarized to assist clinicians in anticipating life review content that may improve overall quality of life at the end of life.

SIGNIFICANCE OF RESULTS

Discussions of life completion may improve important health outcomes for patients at the end of life. This intervention may provide a brief, standardized, and transportable means for improving the quality of life of patients with advanced serious illness.

摘要

目的

临终患者不仅面临身体不适的挑战,还面临情感和精神完整性受到威胁的挑战。然而,确定适当、有效和简短的干预措施来解决这些问题一直难以实现。我们基于生命回顾和情感披露文献开发了一种干预措施,并进行了一项试点研究,以确定其可行性和可接受性。本文介绍了定性干预反应。

方法

我们进行了一项三臂随机对照试验,以评估准备和生命完成讨论对晚期严重疾病患者健康结果的影响。有资格接受临终关怀的患者被随机分配到三组之一:(1)干预组(生命完成讨论干预)、(2)对照组(放松冥想)和对照组(无干预)。干预组的受试者与一名促进者会面三次。第 1 次会议侧重于人生故事,第 2 次会议侧重于宽恕,第 3 次会议侧重于遗产和传承。

结果

18 名受试者参加了试点干预访谈。来自不同社会经济背景的受试者都能轻松完成干预。第 1 次会议的结果展示了参与者在重新联系以前的生活角色、价值观和成就时给出的叙事反应。第二次会议展示了人们可能会做出不同选择的反思,并探讨了提供和寻求的宽恕。第 1 次和第 2 次会议的内容为讨论第 3 次会议的经验教训和遗产和传承奠定了基础。总结了反应,以帮助临床医生预测生命回顾的内容,从而提高临终患者的整体生活质量。

意义

生命完成的讨论可能会改善临终患者的重要健康结果。这种干预措施可能为改善晚期严重疾病患者的生活质量提供一种简短、标准化和可移植的方法。

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