Department of Agriculture and Environmental Science, School of Dietetics and Human Nutrition, Centre for Indigenous Peoples' Nutrition and the Environment (CINE), Macdonald Campus of McGill University, Ste-Annede-Bellevue, QC, Canada.
Glob Health Promot. 2009 Dec;16(4):16-26. doi: 10.1177/1757975909348111.
The use of storytelling in qualitative research involving Inuit compliments the oral tradition of Inuit culture. The objective of the research was to explore the use of qualitative methods to gain understanding of the experience of living with diabetes, with the ultimate goal of better formulating health care delivery and health promotion among Inuit.
In-depth interviews were analyzed and interpreted using thematic analysis, open coding, and structured narrative analysis. Inuit community members acted as partners through all stages of the research.
''Because the more we understand, the more we're gonna do a prevention on it ... What I want is use my, use my diabetes, what I have ... so that it can be used by other people for prevention because they'll have understanding about it'' - an Inuk storyteller speaks to the value of education in health promotion. Key methodological issues found relevant to improving qualitative research with Indigenous Peoples include: (i) participatory research methods, grounded in principals of equity, through all phases of research; (ii) the presentation of narratives rather than only interpretations of narratives; (iii) understanding of culture, language, and place to frame the interpretation of the stories in the context within which storytellers experience living with their diabetes, and (iv) the value of multiple methods of analyses.
This article comments on the challenges of conducting rigorous research in a cross-cultural setting and outlines methodologies that can improve qualitative narrative analyses research. The research highlighted experiences of living with diabetes and the ways in which storytellers coped and negotiated social support.
在涉及因纽特人的定性研究中使用故事叙述符合因纽特文化的口头传统。本研究的目的是探索使用定性方法来了解糖尿病患者的体验,最终目标是更好地制定因纽特人的医疗保健和健康促进措施。
采用主题分析、开放式编码和结构化叙述分析对深度访谈进行分析和解释。因纽特社区成员在研究的所有阶段都作为合作伙伴参与其中。
“因为我们了解得越多,就越能进行预防……我想要的是利用我的、我所患有的糖尿病……以便其他人可以将其用于预防,因为他们会对此有更多的了解。”一位因纽特讲故事者谈到了健康教育在健康促进中的价值。发现与改进与土著人民合作的定性研究相关的关键方法问题包括:(i) 参与式研究方法,以公平原则为基础,贯穿研究的所有阶段;(ii) 呈现叙述而不仅仅是叙述的解释;(iii) 理解文化、语言和地点,以便在讲故事者体验他们的糖尿病的背景下对故事进行解释;以及 (iv) 多种分析方法的价值。
本文评论了在跨文化环境中进行严格研究的挑战,并概述了可以改进定性叙事分析研究的方法。该研究强调了与糖尿病患者共同生活的经历,以及讲故事者应对和协商社会支持的方式。