New Jersey Regional Hemophilia Treatment Center, University of Medicine and Dentistry of New Jersey - Robert Wood Johnson Medical School, New Brunswick, NJ, USA.
Haemophilia. 2010 Jul 1;16(4):656-61. doi: 10.1111/j.1365-2516.2010.02217.x. Epub 2010 Mar 16.
Boys with haemophilia are now encouraged to exercise and take part in physical activities, but actual measures of time spent in active participation is lacking. The aim of this study was to obtain an objective measure of daily physical activity in boys with haemophilia as compared with healthy controls. The study also aimed to ascertain the social and cognitive factors associated with exercise in this population. Seventeen patients (aged 11-18 years) with haemophilia were studied and compared with 44 healthy controls (aged 10-16.5 years). Physical activity was measured by accelerometry. Psychosocial correlates were assessed using validated questionnaires. Measured physical activity levels in subjects with haemophilia were slightly higher than for the control group. Both groups spent 70% of the day inactive, with similar proportions of time in moderate and vigorous activity. Subjects with haemophilia had a favourable self-image and similar levels of anxiety as peers without a bleeding disorder. Self-efficacy scores were lower than for controls suggesting increased sensitivity to barriers and lack of acceptance of alternatives. Health beliefs did not influence physical activity, but a negative correlation of time spent in high or vigorous activity with scores for support-seeking was observed. The data demonstrate that in the appropriate social environment and with medical support, patients with haemophilia may be as physically active as their peers without a bleeding disorder. Further investigation into the psychosocial barriers of physical activity in patients with haemophilia is needed to more effectively encourage healthy behaviours.
现在鼓励患有血友病的男孩进行锻炼和参加体育活动,但缺乏实际的积极参与时间衡量标准。本研究的目的是获得患有血友病的男孩与健康对照组相比的日常体育活动的客观衡量标准。该研究还旨在确定与该人群运动相关的社会和认知因素。研究了 17 名(年龄 11-18 岁)血友病患者,并与 44 名健康对照组(年龄 10-16.5 岁)进行了比较。通过加速度计测量体育活动。使用经过验证的问卷评估心理社会相关性。患有血友病的受试者的运动量略高于对照组。两组有 70%的时间不活跃,中度和剧烈活动的比例相似。患有血友病的受试者自我形象良好,焦虑程度与没有出血性疾病的同龄人相似。自我效能评分低于对照组,这表明对障碍的敏感性增加,对替代方案的接受度降低。健康信念不会影响体育活动,但观察到高活动量或剧烈活动时间与寻求支持得分呈负相关。数据表明,在适当的社会环境和医疗支持下,血友病患者可能与没有出血性疾病的同龄人一样活跃。需要进一步研究血友病患者体育活动的心理社会障碍,以更有效地鼓励健康行为。