Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, PA 19102-1192, USA.
Phys Ther. 2010 Sep;90(9):1254-64. doi: 10.2522/ptj.20090388. Epub 2010 Jun 24.
Understanding family priorities for children and youth with cerebral palsy is essential for family-centered service.
The purposes of this study were: (1) to identify family priorities for activity and participation in children and youth with cerebral palsy and (2) to determine differences based on age and Gross Motor Functional Classification System (GMFCS) level.
Five hundred eighty-five children and youth with cerebral palsy and their caregivers participated at regional children's hospitals. The children and youth were 2 to 21 years of age; 56% were male, and 44% were female. Their caregivers, predominantly mothers (80%), had a mean age of 40.3 years (SD=9.3). The Canadian Occupational Performance Measure was administered to caregivers to identify their priorities for their children. The priorities were coded into 3 categories (daily activities, productivity, and leisure) and 13 subcategories. The GMFCS levels were determined by assessors who met the criterion for reliability. Friedman and Kruskal-Wallis one-way analyses of variance were used to examine differences in priorities.
Parents of children in all age groups and GMFCS levels II to V identified more priorities for daily activities. Parents of school-aged children and youth had more priorities for productivity than parents of younger children. For parents of children in all age groups and motor function levels, self-care was the most frequent priority subcategory. Sixty-one percent of parents identified at least one priority related to mobility.
The study did not include qualitative analysis of priorities of parents.
Parents' priorities for their children and youth with cerebral palsy differed depending on age and gross motor function level; however, the most frequent priority for all age groups was daily activities. Interviews with families are recommended for identifying outcomes for activity and participation and developing an intervention plan.
了解脑瘫儿童和青少年的家庭优先事项对于以家庭为中心的服务至关重要。
本研究的目的是：（1）确定脑瘫儿童和青少年的活动和参与的家庭优先事项，（2）根据年龄和粗大运动功能分类系统（GMFCS）水平确定差异。
585 名脑瘫儿童和青少年及其照顾者在区域儿童医院参与。儿童和青少年年龄在 2 至 21 岁之间；56%为男性，44%为女性。他们的照顾者主要是母亲（80%），平均年龄为 40.3 岁（SD=9.3）。通过对照顾者进行加拿大职业表现测量，以确定他们对孩子的优先事项。这些优先事项被编码为 3 类（日常活动、生产力和休闲）和 13 个子类别。GMFCS 水平由符合可靠性标准的评估人员确定。使用 Friedman 和 Kruskal-Wallis 单向方差分析来检查优先事项的差异。
所有年龄组和 GMFCS 水平 II 至 V 的儿童的父母都确定了更多的日常活动优先事项。学龄儿童和青少年的父母比年幼儿童的父母有更多的生产力优先事项。对于所有年龄组和运动功能水平的儿童的父母，自我护理是最常见的优先事项子类别。61%的父母确定了至少一个与移动性相关的优先事项。
该研究没有包括对父母优先事项的定性分析。
脑瘫儿童和青少年的父母的优先事项因年龄和粗大运动功能水平而异；然而，所有年龄组最常见的优先事项是日常活动。建议对家庭进行访谈，以确定活动和参与的结果，并制定干预计划。
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