Christie Hospital NHS Foundation Trust, UK.
Palliat Med. 2011 Jan;25(1):52-61. doi: 10.1177/0269216310375998. Epub 2010 Aug 18.
Palliative care exists in a variety of settings and palliative care teams form many guises within this. A Palliative Medicine Outpatient Clinic (PMOC) exists to meet the flexible provision of the needs and preferences of individuals within whatever care setting they reside. This explorative study used a qualitative methodology, capturing patients' actual experience of care in preference to their satisfaction, as this is a more accurate measure of how and what patients judge as important in their healthcare. The overall themes in this paper point to the 'value' that patients perceived from attending the PMOC and how important the clinics were to clinicians that provided the care. The clinic facilitates much more than symptom control and here lies the challenge in how we convert the very positive experience of individuals into a language of outcome measures that captures the 'essence' of our work in this fiscally driven health economy.
姑息治疗存在于多种环境中,姑息治疗团队在这些环境中以多种形式存在。姑息治疗门诊诊所(PMOC)的存在是为了满足个人在任何护理环境中的需求和偏好的灵活提供。这项探索性研究采用了定性方法,优先考虑患者的实际护理体验,而不是他们的满意度,因为这是衡量患者在医疗保健中如何以及认为什么重要的更准确方法。本文中的总体主题指向患者从参加 PMOC 中感知到的“价值”,以及该诊所对提供护理的临床医生的重要性。该诊所不仅能够控制症状,而且还存在如何将个人的非常积极的体验转化为能够捕捉我们在这个以财政为导向的健康经济中工作的“本质”的结果测量语言的挑战。