Haschberger B, Hesse J, Heiden M, Seitz R, Schramm W
Paul-Ehrlich-Institut, Postfach, 63207 Langen.
Hamostaseologie. 2010 Nov;30 Suppl 1:S62-4.
The DHR (Deutsches Hämophilieregister, German Haemophilia Register) records patient data on haemophilia A, haemophilia B, von Willebrand disease, and other coagulation factor deficiency disorders. The DHR has been online since 2009. The participation in the DHR leads to additional administrative workload for the hospitals and physicians, but provides many advantages as well: A standard of documentation will be developed to give evidence for the hospitals. They may use their own data as well as with new possibilities for data processing at any time. Reports in accordance with Section21 TFG (Transfusionsgesetz, German Transfusion Act) are compiled automatically and transmitted to the Paul-Ehrlich-Institut. The DHR may support the searching for patients fulfilling the requirements for participation in a study.
德国血友病登记处（DHR）记录了甲型血友病、乙型血友病、血管性血友病以及其他凝血因子缺乏症的患者数据。该登记处自2009年起上线。参与DHR会给医院和医生带来额外的行政工作量，但也有诸多优势：将制定一种文档标准，为医院提供依据。医院可以随时使用自身数据以及新的数据处理可能性。根据德国输血法第21条编制的报告将自动生成并传输至保罗·埃利希研究所。DHR可以协助寻找符合参与某项研究要求的患者。
