唐氏综合征患儿父母对睡眠障碍及睡眠呼吸紊乱的认知
Parental perceptions of sleep disturbances and sleep-disordered breathing in children with Down syndrome.
作者信息
Rosen Dennis, Lombardo Angela, Skotko Brian, Davidson Emily Jean
机构信息
Division of Respiratory Diseases, Children’s Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA.
出版信息
Clin Pediatr (Phila). 2011 Feb;50(2):121-5. doi: 10.1177/0009922810384260. Epub 2010 Nov 22.
OBJECTIVES
Children with Down syndrome (DS) have increased difficulty initiating and maintaining sleep (DIMS), excessive daytime sleepiness (EDS), and obstructive sleep apnea (OSA). As part of a quality improvement initiative, parents of children enrolled in the Children's Hospital Boston Down Syndrome Program were surveyed about their child's sleep and breathing patterns while asleep.
METHODS
An anonymous Internet-based questionnaire was used in the study.
RESULTS
The completion rate was 46.5% (255/548). DIMS and EDS were frequently/almost always present in more than half the children. Among parents unconcerned about their child's breathing, 11.8% witnessed apnea and 4.2% gasping/choking more than once monthly. Parents of children status post adenotonsillectomy (AT) reported witnessed apnea (47.5%), gasping/choking (28.9%) more than once monthly.
DISCUSSION
There is room for improved screening of sleep disturbances, OSA in children with DS. The high frequency of persistence of OSA following AT should prompt for continued screening following AT.
目的
唐氏综合征（DS）患儿在开始和维持睡眠方面存在更大困难（睡眠启动和维持障碍，DIMS）、日间过度嗜睡（EDS）以及阻塞性睡眠呼吸暂停（OSA）。作为质量改进计划的一部分，对波士顿儿童医院唐氏综合征项目中登记患儿的家长就其孩子睡眠时的睡眠和呼吸模式进行了调查。
方法
本研究采用基于互联网的匿名问卷。
结果
完成率为46.5%（255/548）。超过半数的患儿经常/几乎总是存在睡眠启动和维持障碍及日间过度嗜睡。在不担心孩子呼吸问题的家长中，11.8%的家长每月不止一次目睹孩子呼吸暂停，4.2%的家长每月不止一次目睹孩子喘气/窒息。接受过腺样体扁桃体切除术（AT）患儿的家长报告每月不止一次目睹孩子呼吸暂停的比例为47.5%，喘气/窒息的比例为28.9%。
讨论
唐氏综合征患儿睡眠障碍、阻塞性睡眠呼吸暂停的筛查仍有改进空间。腺样体扁桃体切除术后阻塞性睡眠呼吸暂停持续存在的高发生率提示术后应持续进行筛查。
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