Center for AIDS Prevention Studies, University of California, San Francisco, CA, USA.
Psychol Health Med. 2011 Jan;16(1):74-85. doi: 10.1080/13548506.2010.521568.
Previous research has shown that HIV stigma in India can be characterized by a framework dividing manifestations into enacted (discrimination), vicarious (hearing stories of discrimination), felt normative (perceptions of stigma's prevalence), and internalized stigma (personal endorsement of stigma beliefs). We examined whether this framework could explain associations among stigma, efforts to avoid HIV serostatus disclosure, and depression symptoms in a cohort of 198 HIV-infected individuals from Southern India who were followed up for one year as part of a study of antiretroviral adherence. Prior studies had suggested that disclosure avoidance was a primary outcome of stigma and that impaired well-being was a primary outcome of disclosure avoidance. Analyses from our longitudinal research revealed that the pattern of associations among stigma, disclosure avoidance, and depression symptoms remained consistent over time. Enacted and vicarious stigmas were correlated with felt normative stigma beliefs. In turn, felt normative stigma was correlated with disclosure avoidance. And, enacted stigma, internalized stigma, and disclosure avoidance were all associated with depression symptoms. However, even though the overall framework held together, internalized stigma and depression symptoms dropped significantly over time while other components remained unchanged. These findings suggest that, although HIV stigma may limit disclosure, it does not invariably lead to psychological maladjustment. Amidst ongoing perceptions and experiences of stigma, HIV-positive individuals can achieve significant improvements in their acceptance of the disease and in mental well-being.
先前的研究表明,印度的艾滋病毒耻辱感可以用一个框架来描述,该框架将表现分为实施(歧视)、间接(听到歧视的故事)、感觉规范(对耻辱感流行的看法)和内化的耻辱感(个人认可耻辱感信念)。我们研究了在印度南部的一个由 198 名 HIV 感染者组成的队列中,这个框架是否可以解释耻辱感、避免 HIV 阳性状态披露的努力以及抑郁症状之间的关联。这些感染者参与了一项关于抗逆转录病毒药物依从性的研究,他们在一年的时间里接受了随访。先前的研究表明,避免披露是耻辱感的主要结果,而幸福感受损是避免披露的主要结果。我们的纵向研究分析表明,耻辱感、披露回避和抑郁症状之间的关联模式随着时间的推移保持一致。实施和间接的耻辱感与感觉规范的耻辱感信念相关。反过来,感觉规范的耻辱感与披露回避相关。而且,实施的耻辱感、内化的耻辱感和披露回避都与抑郁症状相关。然而,尽管整体框架保持一致,但内化的耻辱感和抑郁症状随着时间的推移显著下降,而其他因素保持不变。这些发现表明,尽管艾滋病毒耻辱感可能限制披露,但它并不一定会导致心理适应不良。在持续的耻辱感和经历中,HIV 阳性个体可以在接受疾病和心理健康方面取得显著改善。