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慢性阻塞性肺疾病的预先医疗指示计划:障碍与机遇。

Advance care planning in chronic obstructive pulmonary disease: barriers and opportunities.

机构信息

Providence Portland Medical Center, 5050 NE Hoyt St, Suite 540, Portland, OR 97213, USA.

出版信息

Curr Opin Pulm Med. 2011 Mar;17(2):103-9. doi: 10.1097/mcp.0b013e328341ce80.

Abstract

PURPOSE OF REVIEW

Experts in palliative care have increasingly recognized the global epidemic of chronic obstructive pulmonary disease (COPD), its astonishing rise in prevalence, and its profound impact on patients' quality of life and functional capacity. Unfortunately, patients with COPD receive less advance care planning (ACP) and palliative care as compared with patients with other diseases with similar prognoses. This review highlights recent advances in identifying barriers to ACP and opportunities for providing more effective and timely palliative care.

RECENT FINDINGS

Patients with COPD identify dyspnea as their most disabling symptom. Disease-directed care provides only partial relief from dyspnea, which eventually becomes refractory and requires transition to palliative care. Throughout all stages of COPD, however, integrating palliative care with disease-directed treatments improves patients' well being and functional capacities. Observational studies have identified multiple barriers to effective ACP. Because of the unique disease trajectory of COPD, professional groups have proposed new models for palliative care specifically tailored to COPD.

SUMMARY

Patients with COPD benefit from better integration of palliative and disease-specific care throughout the course of their disease from diagnosis to death. Pulmonary rehabilitation may provide a platform for coordinating integrated care. Health agencies will increasingly expect better coordination of services for patients with this progressive, disabling, and eventually terminal disease.

摘要

目的综述

姑息治疗专家越来越多地认识到慢性阻塞性肺疾病(COPD)的全球性流行,其发病率惊人上升,以及其对患者生活质量和功能能力的深远影响。不幸的是,与其他具有相似预后的疾病相比,COPD 患者接受的预先护理计划(ACP)和姑息治疗较少。本综述强调了确定 ACP 障碍和提供更有效和及时姑息治疗机会的最新进展。

最近的发现

COPD 患者将呼吸困难视为最致残的症状。针对疾病的护理只能部分缓解呼吸困难,最终呼吸困难变得难以控制,需要过渡到姑息治疗。然而,在 COPD 的所有阶段,将姑息治疗与针对疾病的治疗相结合可以提高患者的舒适度和功能能力。观察性研究确定了影响 ACP 有效性的多种障碍。由于 COPD 的独特疾病轨迹,专业团体已经提出了专门针对 COPD 的姑息治疗新模式。

总结

从 COPD 的诊断到死亡,COPD 患者从疾病的整个过程中都受益于姑息治疗和疾病特异性治疗的更好结合。肺康复可能为协调综合护理提供一个平台。随着这种进行性、致残性和最终致命疾病的患者服务需求的增加,卫生机构将越来越期望更好地协调服务。

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