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分享生和死:在脆弱性和安全感之间的平衡。注册护士在居家临终关怀坐式服务中的体验。

Sharing living and dying: A balancing act between vulnerability and a sense of security. Enrolled nurses' experiences of working in the sitting service for dying patients at home.

机构信息

School of Health and Medical Science, Örebro University, Örebro, Sweden.

出版信息

Palliat Support Care. 2011 Sep;9(3):295-303. doi: 10.1017/S1478951511000241.

Abstract

OBJECTIVE

To describe enrolled nurses' (ENs') experiences of working in a sitting service for dying patients at home (SSH).

METHOD

The ENs who participated in this study had permanent jobs in community care/ primary care, but were also employed part time in a special home-sitting service organization in a municipality in the south of Sweden. Data were collected by four focus group interviews with 17 enrolled nurses. Qualitative content analysis was used to analyze the data.

RESULTS

Care-giving in SSH was a balancing act between a sense of security and a feeling of vulnerability. Feeling secure and valued and that one is developing both professionally and personally, stemmed from working in partnership, whereas a feeling of vulnerability was associated with managing closeness and distance, being a mediator, having responsibility and feeling guilty, feeling hindered from doing good, facing loneliness, and affecting private lives.

SIGNIFICANCE OF RESULTS

SSH makes it possible for people who are terminally ill to remain at home until they die. If the SSH organization were not an option for dying patients and their families, the pressure on the healthcare would be dramatically increased.

摘要

目的

描述注册护士在家庭临终关怀坐护服务(SSH)中工作的体验。

方法

参与本研究的注册护士在社区护理/初级保健部门有固定工作,但也在瑞典南部一个市的特殊家庭坐护服务组织兼职。数据通过对 17 名注册护士的四次焦点小组访谈收集。采用定性内容分析法对数据进行分析。

结果

SSH 中的护理工作是一种安全感和脆弱感之间的平衡。感到安全和有价值,并且在专业和个人方面都得到发展,源于合作工作,而脆弱感与管理亲近和距离、充当调解人、承担责任和感到内疚、感到无法做好事、面对孤独以及影响私人生活有关。

结果的意义

SSH 使身患绝症的人能够在家中一直待到去世。如果 SSH 组织不是临终患者及其家属的选择,那么医疗保健的压力将大大增加。

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