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生长相关生活质量。

Growth-related quality of life.

机构信息

Göteborg Paediatric Growth Research Centre, Sahlgrenska Academy, Göteborg University, Göteborg, Sweden.

出版信息

Horm Res Paediatr. 2011;76 Suppl 3:51-2. doi: 10.1159/000330162. Epub 2011 Sep 7.

Abstract

Measuring a child's quality of life (QoL) is a complex dynamic, involving consideration of both present circumstances and future limitations. In relation to short stature, health-related QoL, with its emphasis on current health status, may be inadequate to describe QoL in children with treatable growth problems. Growth problems concern not only current physical health (being) and adaptation to the physical and social environment (belonging) but also what will happen in the future as a consequence of growth problems and the possibility of achieving the potential of the individual (becoming). These three aspects of QoL should be included in growth-related QoL in order to reflect the reduced QoL resulting from continued short stature and the potential benefit of growth enhancement. Future QoL instruments for growth-related problems should incorporate aspects of 'becoming' and the long-term consequences of growth improvement for the individual.

摘要

衡量儿童的生活质量(QoL)是一个复杂的动态过程,需要考虑当前情况和未来的限制。就身材矮小而言,健康相关的 QoL 侧重于当前的健康状况,可能不足以描述可治疗的生长问题儿童的 QoL。生长问题不仅涉及当前的身体健康(存在)和对身体和社会环境的适应(归属),还涉及由于生长问题和实现个人潜力的可能性而在未来会发生什么(成为)。这三个方面的 QoL 应该包含在与生长相关的 QoL 中,以反映持续身材矮小导致的 QoL 降低和生长增强的潜在益处。用于与生长相关问题的未来 QoL 工具应该包含“成为”的方面以及生长改善对个体的长期影响。

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