University West, Trollhättan, Sweden.
Nurs Inq. 2011 Dec;18(4):336-47. doi: 10.1111/j.1440-1800.2011.00535.x. Epub 2011 Jul 10.
Living with an adult family member using advanced medical technology at home An increased number of chronically ill adults perform self-care while using different sorts of advanced medical technology at home. This hermeneutical study aimed to gain a deeper understanding of the meaning of living with an adult family member using advanced medical technology at home. Eleven next of kin to adults performing self-care at home, either using long-term oxygen from a cylinder or ventilator, or performing peritoneal or haemodialysis, were interviewed. The qualitative interviews were analysed using a Gadamerian methodology. The main interpretation explained the meaning as rhythmical patterns of connectedness versus separation, and of sorrow versus reconciliation. Dependence on others was shown in the need for support from healthcare professionals and significant others. In conclusion, next of kin took considerable responsibility for dependent-care. All next of kin were positive to the idea of bringing the technology home, even though their own needs receded into the background, while focusing on the best for the patient. The results were discussed in relation to dependent-care and transition, which may have an influence on the self-care of next of kin and patients. The study revealed a need for further nursing attention to next of kin in this context.
与在家中使用高级医疗技术的成年家庭成员共同生活 越来越多的慢性病成年人在家中使用不同类型的高级医疗技术进行自我护理。本解释性研究旨在更深入地了解与在家中使用高级医疗技术的成年家庭成员共同生活的含义。采访了 11 名在家中进行自我护理的成年人的近亲,他们使用的是长管或呼吸机中的长期氧气,或进行腹膜或血液透析。使用伽达默尔方法论对定性访谈进行了分析。主要解释将其解释为联系与分离、悲伤与和解的节奏模式。对他人的依赖表现为需要来自医疗保健专业人员和其他重要人员的支持。结论是,近亲承担了相当大的依赖护理责任。所有的近亲都对将技术带回家的想法持积极态度,尽管他们自己的需求退居次要,而专注于为患者提供最佳服务。研究结果与依赖护理和过渡有关,这可能会对近亲和患者的自我护理产生影响。该研究揭示了在这种情况下,护理人员需要进一步关注近亲。