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父母患癌后的生活质量:随时间的变化及影响因素。

Quality of life of parents diagnosed with cancer: change over time and influencing factors.

机构信息

Independent Department of Medical Psychology and Medical Sociology, University of Leipzig, Leipzig, Germany.

出版信息

Eur J Cancer Care (Engl). 2012 Jul;21(4):535-41. doi: 10.1111/j.1365-2354.2012.01330.x. Epub 2012 Feb 9.

Abstract

Suffering from cancer while having parental responsibilities can amplify the psychosocial strain that the disease puts on the individual as well as on the whole family system. Our longitudinal study examines changes in the quality of life of cancer patients in relation to parenthood. The quality of life of cancer patients is assessed with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire 30-item version during the initial treatment period (T1) and compared to the quality of life 2 years later (T2). Two groups of patients are compared: those who have children below the age of 18 years (n= 41) and those who do not have children (n= 28). Shortly after being diagnosed with cancer (T1), both groups report a similarly low quality of life. Two years later (T2), individuals with children below the age of 18 report better quality of life on the majority of the dimensions assessed. However, variance analysis did not show that this is an independent effect of parenthood. In fact, having a partner and being female proved to impact the quality of life. These findings support the existing body of research on the influence of social support and gender on quality of life. The resulting limitations and suggestions on how to overcome them in further research are discussed.

摘要

患有癌症的同时又要承担为人父母的责任,会加剧疾病给个体和整个家庭系统带来的心理社会压力。我们的纵向研究考察了癌症患者与父母身份相关的生活质量变化。在初始治疗期间(T1),使用欧洲癌症研究与治疗组织生活质量问卷 30 项版本评估癌症患者的生活质量,并将其与 2 年后(T2)的生活质量进行比较。我们比较了两组患者:一组是有 18 岁以下子女的患者(n=41),另一组是没有子女的患者(n=28)。在被诊断出癌症后不久(T1),两组患者报告的生活质量都很低。两年后(T2),有 18 岁以下子女的患者在评估的大多数维度上报告了更好的生活质量。然而,方差分析并没有表明这是父母身份的独立影响。事实上,有伴侣和女性的身份被证明会影响生活质量。这些发现支持了关于社会支持和性别对生活质量影响的现有研究。讨论了研究中存在的局限性以及如何克服这些局限性的建议。

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