活体肾供体及其家庭护理人员：开发一个基于证据的教育和社会支持网站。
Living kidney donors and their family caregivers: developing an evidence-based educational and social support website.
作者信息
Taylor Laura A, Bahreman Nasreen, Hayat Matthew J, Hoey Frank, Rajasekaran Geetha, Segev Dorry L
机构信息
Johns Hopkins University School of Nursing, Baltimore, MD, USA.
出版信息
Prog Transplant. 2012 Jun;22(2):119-28. doi: 10.7182/pit2012611.
CONTEXT
Although graft and patient survival rates for living kidney donation are improved, some healthcare providers question whether volunteer donors and their informal caregivers are fully informed of the donation process and the risks involved. Donors and their family caregivers have reported that they receive limited information about the predonation and donor recovery process. Offering web-based information and social support is one way to address this gap.
STRATEGY
Living kidney donor candidates and their family caregivers participating in the Living Donor Information Network for Caregiving (LINC) have access to a variety of online informational resources and a social support discussion forum throughout their living kidney donation experience. Strategies in the development and implementation of an online information and social-support resource are presented.
CONCLUSIONS
Use of the LINC website for information and support may assist health care providers in identifying potential barriers in the current donation process and provide direction for enhancing knowledge and confidence among donors and family caregivers.
背景
尽管活体肾捐赠的移植物和患者存活率有所提高，但一些医疗服务提供者质疑志愿捐赠者及其非正式护理人员是否充分了解捐赠过程及其中涉及的风险。捐赠者及其家庭护理人员报告称，他们获得的关于捐赠前和捐赠者恢复过程的信息有限。提供基于网络的信息和社会支持是弥补这一差距的一种方式。
策略
参与活体捐赠者护理信息网络（LINC）的活体肾捐赠候选者及其家庭护理人员在整个活体肾捐赠过程中可以使用各种在线信息资源和一个社会支持讨论论坛。本文介绍了开发和实施在线信息及社会支持资源的策略。
结论
使用LINC网站获取信息和支持可能有助于医疗服务提供者识别当前捐赠过程中的潜在障碍，并为增强捐赠者和家庭护理人员的知识及信心提供指导。
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