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镰状细胞贫血从儿科向成人医学过渡中的障碍。

Barriers in transition from pediatrics to adult medicine in sickle cell anemia.

作者信息

Lebensburger Jeffrey D, Bemrich-Stolz Christina J, Howard Thomas H

机构信息

Department of Pediatrics, University of Alabama at Birmingham, Birmingham, AL, USA.

出版信息

J Blood Med. 2012;3:105-12. doi: 10.2147/JBM.S32588. Epub 2012 Sep 19.

Abstract

Transition of care from pediatric to adult providers is an essential step in the care of young adults with sickle cell anemia. Transition programs should be developed by individual institutions to systematically enhance the transition process for their patients. Prior to transfer, patients must be educated about their disease and personal medical history and develop skill sets required to navigate the adult health care setting. The objective of this literature review is to identify key concepts associated with transition of care for patients with sickle cell anemia. First, transition programs should be developed so that education about transition can begin at an early age. The readiness of patients and families should be assessed and education tailored to meet individual patient needs. Finally, the emotions and fears about transition should be recognized and addressed prior to transition.

摘要

从儿科医疗服务提供者向成人医疗服务提供者的护理过渡,是镰状细胞贫血青年患者护理中的关键一步。各机构应制定过渡计划,以系统地加强其患者的过渡过程。在转诊之前,必须让患者了解自己的疾病和个人病史,并培养在成人医疗环境中所需的技能。本文献综述的目的是确定与镰状细胞贫血患者护理过渡相关的关键概念。首先,应制定过渡计划,以便在患者幼年时就开始进行有关过渡的教育。应评估患者及其家庭的准备情况,并根据患者的个体需求进行有针对性的教育。最后,在过渡之前,应认识并处理对过渡的情绪和恐惧。

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本文引用的文献

1
Exploring Adult Care Experiences and Barriers to Transition in Adult Patients with Sickle Cell Disease.
Int J Hematol Ther. 2015;1(1). doi: 10.15436/2381-1404.15.003. Epub 2015 Sep 6.
3
Quality-of-care indicators for children with sickle cell disease.
Pediatrics. 2011 Sep;128(3):484-93. doi: 10.1542/peds.2010-1791. Epub 2011 Aug 15.
5
Young adults with SCD in US children's hospitals: are they different from adolescents?
Pediatr Blood Cancer. 2012 May;58(5):741-5. doi: 10.1002/pbc.23262. Epub 2011 Jul 27.
6
Supporting the health care transition from adolescence to adulthood in the medical home.
Pediatrics. 2011 Jul;128(1):182-200. doi: 10.1542/peds.2011-0969. Epub 2011 Jun 27.
7
Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.
J Pediatr Hematol Oncol. 2011 Jul;33(5):379-82. doi: 10.1097/MPH.0b013e318211bb2e.
9
The role of neuropsychological evaluation in pediatric sickle cell disease.
Clin Neuropsychol. 2011 Aug;25(6):903-25. doi: 10.1080/13854046.2011.560190.

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