Lebensburger Jeffrey D, Bemrich-Stolz Christina J, Howard Thomas H
Department of Pediatrics, University of Alabama at Birmingham, Birmingham, AL, USA.
J Blood Med. 2012;3:105-12. doi: 10.2147/JBM.S32588. Epub 2012 Sep 19.
Transition of care from pediatric to adult providers is an essential step in the care of young adults with sickle cell anemia. Transition programs should be developed by individual institutions to systematically enhance the transition process for their patients. Prior to transfer, patients must be educated about their disease and personal medical history and develop skill sets required to navigate the adult health care setting. The objective of this literature review is to identify key concepts associated with transition of care for patients with sickle cell anemia. First, transition programs should be developed so that education about transition can begin at an early age. The readiness of patients and families should be assessed and education tailored to meet individual patient needs. Finally, the emotions and fears about transition should be recognized and addressed prior to transition.
从儿科医疗服务提供者向成人医疗服务提供者的护理过渡,是镰状细胞贫血青年患者护理中的关键一步。各机构应制定过渡计划,以系统地加强其患者的过渡过程。在转诊之前,必须让患者了解自己的疾病和个人病史,并培养在成人医疗环境中所需的技能。本文献综述的目的是确定与镰状细胞贫血患者护理过渡相关的关键概念。首先,应制定过渡计划,以便在患者幼年时就开始进行有关过渡的教育。应评估患者及其家庭的准备情况,并根据患者的个体需求进行有针对性的教育。最后,在过渡之前,应认识并处理对过渡的情绪和恐惧。