The Nethersole School of Nursing, Faculty of Medicine, The Chinese University of Hong Kong, 7/F., Esther Lee Building, Shatin, New Territories, Hong Kong, China.
Support Care Cancer. 2013 Jun;21(6):1551-6. doi: 10.1007/s00520-012-1692-4. Epub 2012 Dec 20.
Existing bereavement literature focuses on the care provided in palliative care units or community settings. However, nurses in oncology units are in a unique position to provide bereavement care, which is care extended to the families after the death of cancer patients. This study aimed to explore the perceptions and experiences of bereavement care among nurses and bereaved family members in an oncology unit in Hong Kong.
Semi-structured qualitative interviews were carried out in one oncology unit in Hong Kong with 15 nurses and ten bereaved family members. All interviews were audiotaped, transcribed verbatim and analysed by using qualitative content analysis.
Among the bereaved family members, three themes emerged: being informed, being supported and being with the patient before and after the patient's death. Among the oncology nurses, however, the three identified themes were: elements of good bereavement care, emotional response in providing bereavement care and educational needs in the provision of bereavement care. Comparatively, the experiences of and the opinions on bereavement care identified by the bereaved were more specific than those identified by the nurses.
The findings revealed that there is room for improvement in current bereavement care. Family members were committed to patient care and they expressed their need for more involvement in the patient care, which could result in a positive impact on their grief and loss experience. Nurses were committed to quality care, and they expressed their need for more training on knowledge, skills and attitudes to improve their readiness and competencies in the provision of bereavement care.
现有的丧亲文学侧重于姑息治疗病房或社区环境中的护理。然而,肿瘤科病房的护士处于提供丧亲关怀的独特位置,这是在癌症患者去世后向其家属提供的关怀。本研究旨在探讨香港一家肿瘤科病房护士和丧亲家属对丧亲关怀的看法和体验。
在香港的一家肿瘤科病房对 15 名护士和 10 名丧亲家属进行了半结构式定性访谈。所有访谈均进行录音、逐字转录,并采用定性内容分析法进行分析。
在丧亲家属中,出现了三个主题:被告知、得到支持以及在患者去世前后陪伴患者。然而,肿瘤科护士确定的三个主题是:良好丧亲关怀的要素、提供丧亲关怀时的情绪反应以及提供丧亲关怀方面的教育需求。相比之下,丧亲者所经历的和对丧亲关怀的看法比护士所确定的更具体。
研究结果表明,目前的丧亲关怀还有改进的空间。家属致力于患者的护理,并表示希望更多地参与患者的护理,这可能对他们的悲痛和失落感产生积极影响。护士致力于提供优质护理,并表示需要更多关于知识、技能和态度的培训,以提高他们在提供丧亲关怀方面的准备和能力。