Vesely Claire, Beach Barbara
George Mark Children's House, 2121 George Mark Lane, San Leandro, CA 94578, USA.
J Obstet Gynecol Neonatal Nurs. 2013 May-Jun;42(3):383-9. doi: 10.1111/1552-6909.12027. Epub 2013 Apr 18.
In Western culture, feeding is viewed as symbolic of life, and nonfeeding at the end of life is often considered unacceptable. This sentiment is magnified for infants. Reframing nonfeeding into comprehensive care can be achieved by anticipatory guidance, which can make the experience of infant death meaningful for parents. Since 2004, the George Mark Children's House, an inpatient pediatric palliative care center, has offered this model of care and supported families with challenging clinical experiences. A case study is provided.
在西方文化中,喂食被视为生命的象征,而在生命末期停止喂食通常被认为是不可接受的。这种情绪在婴儿身上更为强烈。通过预期性指导,可以将停止喂食重新构建为全面护理,这能让婴儿死亡的经历对父母来说有意义。自2004年以来,乔治·马克儿童之家,一家住院儿童姑息治疗中心,一直提供这种护理模式,并为面临具有挑战性临床经历的家庭提供支持。本文提供了一个案例研究。