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癌症治疗期间或之后为共同幸存者提供的信息与支持:将“给家庭一个拥抱”视为癌症康复中以家庭为中心干预模式的考量。

Information and support for co-survivors during or after cancer treatment: Consideration of Un Abrazo Para la Familia as a model for family-focused intervention in cancer rehabilitation.

作者信息

Marshall Catherine A, Curran Melissa A, Koerner Susan Silverberg, Weihs Karen L, Hickman Amy C, García Francisco A R

机构信息

Center of Excellence in Women's Health, and Department of Disability and Psychoeducational Studies, University of Arizona, Tucson, AZ, USA.

Family Studies and Human Development, University of Arizona, Tucson, AZ, USA.

出版信息

Work. 2013;46(4):395-405. doi: 10.3233/WOR-131675.

Abstract

OBJECTIVE

The development and evaluation of Un Abrazo Para La Familia, [A Hug for the Family] is described. Un Abrazo is discussed as an effective model of education, information-sharing, and skill-building for use with low-income co-survivors of cancer.

PARTICIPANTS

Sixty co-survivors participated. The majority were women and all reported being Hispanic.

METHODS

Using quantitative data (N=60), the needs, concerns, and characteristics of the co-survivor population served through Un Abrazo are presented. Further, we offer three qualitative case studies (with one co-survivor, one survivor, and one non-participant) to illustrate the model and its impact.

RESULTS

The median level of education level of co-survivors was 12 years. The majority were unemployed and/or identified as homemakers, and indicated receipt of services indicating low-income status. Half reported not having health insurance. The top four cancer-related needs or concerns were: Information, Concern for another person, Cost/health insurance, and Fears.

CONCLUSIONS

Recognizing the centrality of the family in addressing cancer allows for a wider view of the disease and the needs that arise during and after treatment. Key rehabilitation strategies appropriate for intervening with co-survivors of cancer include assessing and building upon strengths and abilities and making culturally-respectful cancer-related information and support accessible.

摘要

目的

描述“给家庭一个拥抱”(Un Abrazo Para La Familia)项目的开展与评估情况。“给家庭一个拥抱”项目被视为一种有效的教育、信息共享及技能培养模式,适用于癌症低收入共同生存者。

参与者

60名共同生存者参与其中。大多数为女性,且均称自己是西班牙裔。

方法

利用定量数据(N = 60),介绍了通过“给家庭一个拥抱”项目服务的共同生存者群体的需求、担忧及特点。此外,我们提供了三个定性案例研究(涉及一名共同生存者、一名幸存者和一名未参与者)以说明该模式及其影响。

结果

共同生存者的教育水平中位数为12年。大多数人失业和/或被认定为家庭主妇,并表示接受了表明低收入状况的服务。半数人报告没有医疗保险。与癌症相关的前四大需求或担忧为:信息、对他人的担忧、费用/医疗保险和恐惧。

结论

认识到家庭在应对癌症中的核心地位,有助于更全面地看待这种疾病以及治疗期间和治疗后出现的需求。适用于干预癌症共同生存者的关键康复策略包括评估并利用其优势和能力,以及提供尊重文化差异的癌症相关信息和支持。

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