Daker-White Gavin, Rogers Anne
Faculty of Health Sciences, Organisation and Delivery of Health Care Research Group, University of Southampton, Highfield, Southampton SO17 1BJ, UK.
BMC Psychiatry. 2013 Nov 1;13:279. doi: 10.1186/1471-244X-13-279.
Digital technologies are increasingly directed at improved monitoring, management and treatment of mental health. However, their potential contribution to social networks and self-management support for people diagnosed with a serious mental illness has rarely been considered. This review and meta-synthesis aimed to examine the processes of engagement and perceived relevance and appropriateness of telehealth interventions for people with a diagnosis of schizophrenia. The review addresses three key questions. How is the use of digital communications technologies framed in the professional psychiatric literature? How might the recognised benefits of telehealth translate to people with a diagnosis of schizophrenia? What is the user perspective concerning Internet information and communication technologies?
A critical interpretive synthesis (CIS) of published findings from quantitative and qualitative studies of telehealth interventions for people with a diagnosis of schizophrenia.
Most studies were of an exploratory nature. The professional discourse about the use of different technologies was overlain by concerns with surveillance and control, focusing on the Internet as a potential site of risk and danger. The critical synthesis of findings showed that the key focus of the available studies was on the delivery of existing traditional approaches (e.g. improving medications adherence, provision of medical information about the condition, symptom monitoring and cognitive behavioural therapy). Even though it was clear that the Internet has considerable potential in terms of accessing and utilising lay support, the potential of communication technologies in mobilising of resources for personal self-management or peer support was a relatively absent or hidden a focus of the available studies.
Based on an interpretive synthesis of available studies, people with a diagnosis of schizophrenia or psychosis use the Internet primarily for the purposes of disclosure and information gathering. Empowerment, regulation and surveillance emerged as the key dimensions of engagement (or not) with telehealth interventions. The findings suggest that telehealth interventions are disproportionately used by particular patient groups (e.g.women, people who are employed). Further research needs to ascertain the mechanisms by which telehealth interventions may be potentially beneficial or harmful for engagement and management to people with a diagnosis of schizophrenia.
数字技术越来越多地用于改善心理健康的监测、管理和治疗。然而,它们对被诊断患有严重精神疾病的人的社交网络和自我管理支持的潜在贡献却很少被考虑。本综述和元综合分析旨在研究远程医疗干预对精神分裂症患者的参与过程以及感知到的相关性和适用性。该综述涉及三个关键问题。在专业精神病学文献中,数字通信技术的使用是如何被构建的?远程医疗的公认益处如何转化为精神分裂症患者的益处?用户对互联网信息和通信技术的看法是什么?
对已发表的关于精神分裂症患者远程医疗干预的定量和定性研究结果进行批判性解释性综合分析(CIS)。
大多数研究具有探索性质。关于不同技术使用的专业论述被对监视和控制的担忧所覆盖,将互联网视为潜在的风险和危险场所。研究结果的批判性综合分析表明,现有研究的关键重点是提供现有的传统方法(例如提高药物依从性、提供有关病情的医疗信息、症状监测和认知行为疗法)。尽管很明显互联网在获取和利用非专业支持方面具有巨大潜力,但通信技术在调动个人自我管理或同伴支持资源方面的潜力在现有研究中相对缺失或未被关注。
基于对现有研究的解释性综合分析,被诊断患有精神分裂症或精神病的人主要将互联网用于披露和信息收集目的。赋权、监管和监视成为参与(或不参与)远程医疗干预的关键维度。研究结果表明,特定患者群体(例如女性、就业人员)过多地使用了远程医疗干预。需要进一步研究以确定远程医疗干预对精神分裂症患者的参与和管理可能有益或有害的机制。