Harris Isobel Marion, Roberts Lesley Martine
Primary Care Clinical Sciences, School of Health and Population Sciences, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom.
J Med Internet Res. 2013 Dec 20;15(12):e285. doi: 10.2196/jmir.2802.
In the United Kingdom, rates of deliberate self-harm (DSH) are rising. Alongside this, there has been an increase in the number of websites available with DSH content, and the Internet is known as a valuable resource for those who feel isolated by their condition(s). However, there is little and contradictory evidence available on the effects of using such websites. Further research is therefore required to examine the use and effects of DSH websites.
Our objectives were to explore (1) the reasons people engage in the use of self-harm forums/websites, (2) the beliefs of users of self-harm forums regarding the role of such websites, (3) how the use of self-harm forums/websites modulates self-harm behaviors, and (4) other ways that self-harm forums affect the lives of individuals who use them.
Data were collected by a questionnaire hosted on 20 websites with self-harm content. Participants were self-selected from users of these sites. Results were analyzed using descriptive statistics and simple thematic analysis.
In total, 329 responses were received with 91.8% (302/329) from female site users. The majority of participants (65.6%, 187/285) visited these sites at least twice per week, and most participants used the sites to find information (78.2%, 223/285) or participate in the forums (68.4%, 195/285). Positive effects of website use such as gaining help and support, isolation reduction, and a reduction in self-harm behaviors were reported by a large number of participants. However, smaller but important numbers reported negative effects including worsened self-harm, being triggered to self-harm, and additional negative physical and psychological effects.
This is the first multisite study to explore DSH website use in depth. There are clear and important benefits to engaging in website use for many individuals; however, these are not experienced by all website users. Negative effects were experienced by moderate numbers following website use, and clinicians should consider the impact of a patient's website use when consulting.
在英国,蓄意自我伤害(DSH)的发生率正在上升。与此同时,提供DSH相关内容的网站数量有所增加,而且互联网对于那些因自身状况而感到孤立的人来说是一种宝贵资源。然而,关于使用此类网站的影响,现有证据很少且相互矛盾。因此,需要进一步研究来考察DSH网站的使用情况及其影响。
我们的目标是探究:(1)人们使用自我伤害论坛/网站的原因;(2)自我伤害论坛用户对这类网站作用的看法;(3)使用自我伤害论坛/网站如何调节自我伤害行为;(4)自我伤害论坛影响使用它们的个体生活的其他方式。
通过在20个有自我伤害内容的网站上发布问卷来收集数据。参与者从这些网站的用户中自行选择。使用描述性统计和简单主题分析对结果进行分析。
共收到329份回复,其中91.8%(302/329)来自女性网站用户。大多数参与者(65.6%,187/285)每周至少访问这些网站两次,并且大多数参与者使用这些网站来查找信息(78.2%,223/285)或参与论坛(68.4%,195/285)。大量参与者报告了使用网站的积极影响,如获得帮助和支持、减少孤立感以及减少自我伤害行为。然而,也有少数但数量可观的参与者报告了负面影响,包括自我伤害行为加剧、被触发进行自我伤害以及额外的负面生理和心理影响。
这是第一项深入探究DSH网站使用情况的多站点研究。对许多人来说,使用网站有明显且重要的益处;然而,并非所有网站用户都能体验到这些益处。使用网站后,有相当数量的人经历了负面影响,临床医生在咨询时应考虑患者使用网站带来的影响。