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摩洛哥穆斯林母亲对唐氏综合征产前筛查的认知与态度。

Mother's awareness and attitudes towards prenatal screening for Down syndrome in Muslim Moroccans.

作者信息

Belahcen Amina, Taloubi Meriem, Chala Sana, Izgua Amal Thimou, Alaoui Asmaa Mdaghri

机构信息

Mohammed V University - Souissi, Faculty of Medicine and Pharmacy, Rabat, Morocco; Tératovigilance Research Team, Mohammed V University - Souissi, Rabat, Morocco.

出版信息

Prenat Diagn. 2014 Sep;34(9):821-30. doi: 10.1002/pd.4373. Epub 2014 May 15.

Abstract

BACKGROUND

Abortion is prohibited and penalized in Morocco. On the other hand, there is no strategy or consensus for prenatal screening for Down syndrome (DS) included into the Moroccan pregnancy monitoring national program.

OBJECTIVES

This study aims to explore the awareness and attitudes of women who have a child with DS regarding prenatal screening for DS.

PATIENTS AND METHODS

This is an observational study based on a knowledge, attitude, and practice survey.

RESULTS

Fifty women who have a child with DS agreed to participate in this survey. Although nearly two-thirds of women had not heard of DS or knew what prenatal screening is prior to the birth of the affected child, the majority felt that screening for DS would be useful in the first (84%) or second (90%) trimester. In line with this, most responders would agree to undergo first trimester (84%) or second trimester (80%) screening in a future pregnancy. Most (94%) of the women felt that information on DS screening should be provided to all Moroccan women in early pregnancy and that a public health program for prenatal screening should be established (94%). Deficit in knowledge was detected in awareness that first trimester ultrasound may allow screening for DS.

CONCLUSION

Women who have a child with DS have low awareness of existing screening tests for the condition but have a positive attitude towards them.

摘要

背景

在摩洛哥,堕胎是被禁止且会受到惩罚的。另一方面,摩洛哥国家孕期监测项目中没有将唐氏综合征(DS)产前筛查纳入其中的策略或共识。

目的

本研究旨在探讨生育患有唐氏综合征孩子的女性对唐氏综合征产前筛查的认知和态度。

患者与方法

这是一项基于知识、态度和实践调查的观察性研究。

结果

五十名生育患有唐氏综合征孩子的女性同意参与本次调查。尽管近三分之二的女性在受影响孩子出生前未曾听说过唐氏综合征或不知道什么是产前筛查,但大多数人认为在孕早期(84%)或孕中期(90%)进行唐氏综合征筛查会有用。与此相符的是,大多数受访者表示在未来怀孕时会同意接受孕早期(84%)或孕中期(80%)筛查。大多数(94%)女性认为应在妊娠早期向所有摩洛哥女性提供唐氏综合征筛查信息,并且应建立一个产前筛查公共卫生项目(94%)。在认识到孕早期超声检查可用于唐氏综合征筛查方面存在知识欠缺。

结论

生育患有唐氏综合征孩子的女性对该病症现有筛查测试的认知较低,但对这些测试持积极态度。

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