Davis Alexis S, Chock Valerie Y, Hintz Susan R
Division of Neonatal and Developmental Medicine, Department of Pediatrics, Stanford University School of Medicine, Palo Alto, California.
Am J Perinatol. 2014 Aug;31(7):549-56. doi: 10.1055/s-0034-1371709. Epub 2014 Apr 4.
As prenatal imaging and genetic diagnostic techniques developed, clinicians knew earlier and with greater accuracy of the extent and severity of fetal anomalies. This, coupled with an acute awareness of high rates of death or devastating neonatal morbidities in some cases, drove efforts to create innovative fetal interventions. However, with advances in neonatal quaternary care, infants with even the most complex congenital anomalies now have a substantially greater chance of survival. But many still require highly coordinated intensive care from the moment of delivery, have lengthy and complicated hospitalizations, and need ongoing complex care and services. Therefore, a new vision of complex fetal medicine must evolve, actively integrating robust multidisciplinary involvement in collaborative counseling, planning, and management. The clinical arc visualized for complex fetal patients should shift toward a comprehensive continuum of care concept-extending from fetal life, through neonatal intensive care, to childhood. The neonatologist plays a critical role in bridging this trajectory, coordinating complex processes to a smooth delivery and neonatal plan, counseling and preparing expectant mothers, and integrating many components of subspecialty input for families and other fetal team members. Neonatologists' engagement and perspective can substantively inform the clinical and strategic direction for fetal centers.
随着产前影像学和基因诊断技术的发展,临床医生能够更早且更准确地了解胎儿异常的程度和严重性。这一点,再加上对某些情况下高死亡率或严重新生儿发病率的敏锐认识,推动了创新胎儿干预措施的研发。然而,随着新生儿四级护理的进步,即使是患有最复杂先天性异常的婴儿现在存活的机会也大大增加。但许多婴儿从出生那一刻起仍需要高度协调的重症护理,住院时间长且复杂,还需要持续的复杂护理和服务。因此,必须发展一种新的复杂胎儿医学愿景,积极整合强大的多学科力量参与协作咨询、规划和管理。为复杂胎儿患者设想的临床流程应转向一个全面的连续护理概念,从胎儿期、经过新生儿重症护理,延伸至儿童期。新生儿科医生在衔接这一轨迹方面发挥着关键作用,协调复杂流程以实现顺利分娩和新生儿护理计划,为准妈妈提供咨询和准备工作,并为家庭和其他胎儿治疗团队成员整合专科意见的多个组成部分。新生儿科医生的参与和观点能够切实为胎儿中心的临床和战略方向提供信息。