Dallara Alexis, Meret Anca, Saroyan John
New York Presbyterian Hospital, Columbia University Medical Center, New York, NY, USA
New York Presbyterian Hospital, Columbia University Medical Center, New York, NY, USA.
J Child Neurol. 2014 Dec;29(12):1728-38. doi: 10.1177/0883073814527159. Epub 2014 Apr 9.
Objectives of this review were to examine definitions and background of palliative care, as well as address whether there is an increased need for palliative care education among neurologists. The review also explores what literature exists regarding palliative care within general neurology and child neurology. A literature review was conducted examining use of palliative care within child neurology. More than 100 articles and textbooks were retrieved and reviewed. Expert guidelines stress the importance of expertise in palliative care among neurologists. Subspecialties written about in child neurology include that of peripheral nervous system disorders, neurodegenerative diseases, and metabolic disorders. Adult and child neurology patients have a great need for improved palliative care services, as they frequently develop cumulative physical and cognitive disabilities over time and cope with decreasing quality of life before reaching the terminal stage of their illness.
本综述的目的是研究姑息治疗的定义和背景,并探讨神经科医生对姑息治疗教育的需求是否增加。该综述还探讨了普通神经科和儿童神经科领域中关于姑息治疗的现有文献。我们进行了一项文献综述,研究儿童神经科中姑息治疗的应用情况。检索并审阅了100多篇文章和教科书。专家指南强调神经科医生具备姑息治疗专业知识的重要性。儿童神经科中涉及的亚专业包括周围神经系统疾病、神经退行性疾病和代谢紊乱。成人和儿童神经科患者对改善姑息治疗服务有很大需求,因为随着时间推移,他们经常会出现累积的身体和认知残疾,并在病情进入终末期之前应对生活质量下降的问题。