太私密了！管理和使用大型患者数据集时的伦理挑战。

TMI! ethical challenges in managing and using large patient data sets.

作者信息

Juengst Eric T

机构信息

Center for Bioethics, Durham, NC, USA; Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.

出版信息

N C Med J. 2014 May-Jun;75(3):214-7. doi: 10.18043/ncm.75.3.214.

DOI:10.18043/ncm.75.3.214

PMID:24830499

Abstract

The advent and expansion of electronic medical record systems and open-access databases are creating a "data tsunami." As this wave descends, we must anticipate and address several ethical and social risks: threats to patient privacy, threats to the reputations of various social groups, and threats to public trust in biomedical research.

摘要

电子病历系统和开放获取数据库的出现与扩展正在引发一场“数据海啸”。随着这股浪潮的袭来，我们必须预见并应对若干伦理和社会风险：对患者隐私的威胁、对各类社会群体声誉的威胁以及对公众对生物医学研究信任的威胁。