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神经运动障碍儿童的营养问题:一项义大利病例系列研究。

Nutritional problems in children with neuromotor disabilities: an Italian case series.

机构信息

Chair of Pediatrics, Department of Medicine and Surgery, Pediatrics Section, University of Salerno, Via Allende, 84081 Baronissi- Salerno, Italy.

出版信息

Ital J Pediatr. 2014 Jul 8;40:61. doi: 10.1186/1824-7288-40-61.

Abstract

BACKGROUND AND AIMS

Several neuromotor disorders share exclusive, although often overlooked, nutritional problems. The objective of this study is therefore to delineate the frequency of malnutrition, evaluate the effectiveness of nutritional care, and identify issues needing to be possibly strengthened when caring for these patients into a general pediatrics department.

PATIENTS AND METHODS

The study included 30 patients, 21 males and 9 females, aged between 2 and 15 years, affected by cerebral palsy, epileptic encephalopathy, and severe psychomotor developmental delay.Nutritional status was assessed by a dietary questionnaire administered to parents to investigate feeding difficulties; 3 days food diary to quantify daily calorie intake; anthropometrical (weight, height/length, body mass index percentiles, plicometry, specific body segments measurement) and blood (blood count, serum iron, albumin, transferrin, calcium, phosphorus) parameters.

RESULTS

More than 44% individuals of the study population was at risk of malnutrition, according to feeding difficulties, progressive depletion of weight, reduced daily calorie intake, reduced albumin and transferrin levels. This occurred despite a massive caregivers commitment, as documented by almost universal parental constant assistance during their long-duration meals.

CONCLUSIONS

Our results individuate the nutritional aspect being still a problem in the care of children with severe neuromotor disability.

摘要

背景与目的

一些神经运动障碍存在独特的(尽管常常被忽视的)营养问题。因此,本研究旨在描述营养不良的发生率,评估营养护理的效果,并确定在综合儿科病房照顾这些患者时可能需要加强的问题。

患者和方法

该研究纳入了 30 名患者,男 21 例,女 9 例,年龄 2 至 15 岁,患有脑瘫、癫痫性脑病和严重精神运动发育迟缓。通过向家长发放饮食问卷来评估喂养困难,调查营养状况;通过 3 天的食物日记来量化每日热量摄入;进行人体测量学(体重、身高/长度、体重指数百分位数、褶皮厚度测量、特定身体部位测量)和血液(血常规、血清铁、白蛋白、转铁蛋白、钙、磷)参数检查。

结果

根据喂养困难、体重逐渐下降、每日热量摄入减少、白蛋白和转铁蛋白水平降低,研究人群中超过 44%的个体存在营养不良风险。尽管家长们付出了巨大的努力,几乎普遍在长时间的喂养过程中给予持续的帮助,但仍存在这种情况。

结论

我们的研究结果表明,在严重神经运动障碍儿童的护理中,营养问题仍然存在。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6220/4130424/2f9c426d8cd6/1824-7288-40-61-1.jpg

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