a Carnegie Research Institute, Leeds Metropolitan University , Fairfax Hall , Leeds , LS6 3QS , UK.
Psychol Health. 2008;23(4):427-41. doi: 10.1080/14768320701205309.
The purpose of this study was to examine the lived experiences of people diagnosed with Multiple Sclerosis (MS). Seven active exercisers with MS participated in semi-structured interviews regarding their exercise experiences since diagnosis. Data were analysed using Interpretative Phenomenological Analysis (IPA; Smith & Osborn, 2003 ). Interpretive Phenomenological Analysis. The results and interpretations of narratives revealed a number of functional limitations due to the severity of MS symptoms, which were found to have a major effect on the ability of the participants to exercise. Furthermore, psychological problems and the heightened behavioural adjustments to the progressive disability led to re-appraisal of ability to exercise. Previous, relevant exercise experience made participants more determined to continue to be able to exercise after diagnosis. The wider exercise experience narratives were related to concerns about safety, dependability on others to overcome the challenges, and potential environmental hazards. The loss of spontaneous opportunities to exercise because of these actual and perceived barriers was key to this population. This research highlighted the need to rethink the health and social service arrangements in relation to exercise provision for individuals with MS.
本研究旨在探讨多发性硬化症(MS)患者的生活体验。7 名积极锻炼的 MS 患者参与了半结构化访谈,内容涉及他们自诊断以来的锻炼经历。数据使用解释现象学分析(IPA;Smith & Osborn,2003)进行分析。解释现象学分析。由于 MS 症状的严重程度,研究结果和对叙述的解释揭示了许多功能限制,这些限制对参与者锻炼的能力产生了重大影响。此外,心理问题和对进行性残疾的行为调整导致对锻炼能力的重新评估。以前的相关锻炼经验使参与者在诊断后更有决心继续锻炼。更广泛的锻炼经验叙述与对安全的担忧、依赖他人克服挑战以及潜在的环境危害有关。由于这些实际和感知到的障碍,丧失了自发锻炼的机会,这对这一人群来说是关键。这项研究强调了需要重新思考与为 MS 患者提供锻炼相关的健康和社会服务安排。