Stoffer Michaela A, Smolen Josef S, Woolf Anthony, Ambrozic Ales, Berghea Florian, Boonen Annelies, Bosworth Ailsa, Carmona Loreto, Dougados Maxime, de Wit Maarten, Erwin Josephine, Fialka-Moser Veronika, Ionescu Ruxandra, Keenan Anne-Maree, Loza Estibaliz, Moe Rikke H, Greiff Rolf, Olejnik Pawel, Petersson Ingemar F, Rat Anne-Christine, Rozman Blaz, Strömbeck Britta, Tanner Lorraine, Uhlig Till, Vlieland Theodora P M Vliet, Stamm Tanja A
Division of Rheumatology, Department of Medicine 3, Medical University of Vienna, Vienna, Austria.
Royal Cornwall Hospital, Truro Cornwall, UK.
Ann Rheum Dis. 2015 Jun;74(6):1145-9. doi: 10.1136/annrheumdis-2014-206176. Epub 2014 Nov 21.
The eumusc.net project is an initiative founded by the European Community and the European League Against Rheumatism. One aim of the project was to facilitate equal standards for musculoskeletal health across Europe. The aim of this work-package was to develop patient-centred and consensus based standards of care (SOC) for osteoarthritis (OA), which should be available in a professional and a patient version.
A systematic review concerning guidelines dealing with OA was conducted. Furthermore, experts in musculoskeletal diseases were contacted to ensure that 'grey' literature was not excluded. Documents that fulfilled predefined inclusion/exclusion criteria were included and all interventions for OA were extracted and categorised. Based on this list of interventions, a three round Delphi exercise with an international and multidisciplinary expert panel, including patient research partners, was performed to achieve expert consensus.
Six documents were included and used for further analysis. Out of them, 46 interventions have been extracted and 10 consensus based SOC were formulated. In addition, a patient version, written in a lay-understandable wording and in the format of checklist questions was developed. An example is SOC 5: "People with OA should achieve optimal pain control using pharmacological and non-pharmacological means." The matching patient-centred checklist question reads: "Do I know how to control pain associated with OA?"
The SOC for OA will be available in the 23 languages of the European Union to enhance unified information to patients and professionals and to further harmonise the treatment/care of OA within Europe.
eumusc.net项目是由欧洲共同体和欧洲抗风湿病联盟发起的一项倡议。该项目的一个目标是促进欧洲各地肌肉骨骼健康的平等标准。本工作包的目标是制定以患者为中心且基于共识的骨关节炎(OA)护理标准(SOC),该标准应有专业版和患者版。
对有关OA的指南进行了系统评价。此外,还联系了肌肉骨骼疾病专家,以确保不排除“灰色”文献。纳入符合预定义纳入/排除标准的文件,并提取和分类所有OA干预措施。基于这份干预措施清单,与包括患者研究伙伴在内的国际多学科专家小组进行了三轮德尔菲调查,以达成专家共识。
纳入6份文件并用于进一步分析。从中提取了46项干预措施,并制定了10项基于共识的SOC。此外,还开发了一个患者版,用通俗易懂的措辞并以清单问题的形式编写。例如,SOC 5:“OA患者应使用药物和非药物手段实现最佳疼痛控制。”与之匹配的以患者为中心的清单问题是:“我知道如何控制与OA相关的疼痛吗?”
OA的SOC将以欧盟的23种语言提供,以加强向患者和专业人员提供统一信息,并进一步协调欧洲境内OA的治疗/护理。