Mathieu Marion, Hammond Constance, Karlin David G
Tous Chercheurs, Marseille, France.
Tous Chercheurs, Marseille, France; Institut de Neurobiologie de la Méditerranée, INMED UMR 901 Inserm, Marseille, France; Aix-Marseille Université, Marseille, France.
PLoS Biol. 2015 Feb 10;13(2):e1002067. doi: 10.1371/journal.pbio.1002067. eCollection 2015 Feb.
Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow "trainees" to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.
患者群体与医学专家之间的真正合作至关重要,但也颇具挑战。我们的培训项目通过为患者群体成员组织实操性的、基于实验室的培训课程来应对这一挑战。这些课程能让“学员”更好地了解自身疾病及生物医学研究过程,并加强患者与当地研究人员之间的联系。在过去十年里,我们和我们的合作机构接待了900多名法国患者,有60多名研究人员和临床医生参与其中。