镰状细胞病青少年的过渡需求。
Transition Needs of Adolescents With Sickle Cell Disease.
作者信息
Abel Regina A, Cho Esther, Chadwick-Mansker Kelley R, D'Souza Natalia, Housten Ashley J, King Allison A
机构信息
Regina A. Abel, PhD, is Staff Scientist, Child Health and Education Laboratory, Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO.
Esther Cho, MS, OTR/L, was Student, Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, at the time of the study.
出版信息
Am J Occup Ther. 2015 Mar-Apr;69(2):6902350030p1-5. doi: 10.5014/ajot.2015.013730.
OBJECTIVE
This article describes how adolescents with sickle cell disease (SCD) perceive their ability to perform everyday tasks required for transition to adult health care and independent living.
METHOD
The Adolescent Autonomy Checklist (AAC) was adapted to include skills associated with managing SCD (AAC-SCD) and was administered to adolescents during clinic visits. Participants indicated "can do already" or "needs practice" for 100 activities in 12 categories.
RESULTS
Of 122 patients, the percentage of adolescents who needed practice was greatest in living arrangements (38.7%), money management (35.8%), vocational skills (29.6%), and health care skills (25.5%). We found a significant effect of age and of cerebrovascular injury on the percentage of those who reported "needs practice" in multiple categories. We found no effect of gender and limited effect of hemoglobin phenotype on any skill category.
CONCLUSION
Findings support the need for educational intervention to improve transition skills in adolescents with SCD.
目的
本文描述了患有镰状细胞病（SCD）的青少年如何看待自己执行向成人医疗保健和独立生活过渡所需日常任务的能力。
方法
对青少年自主检查表（AAC）进行改编，纳入与管理SCD相关的技能（AAC-SCD），并在门诊就诊期间对青少年进行施测。参与者对12个类别中的100项活动表明“已经会做”或“需要练习”。
结果
在122名患者中，青少年需要练习的比例在生活安排（38.7%）、资金管理（35.8%）、职业技能（29.6%）和医疗保健技能（25.5%）方面最高。我们发现年龄和脑血管损伤对在多个类别中报告“需要练习”的比例有显著影响。我们发现性别对任何技能类别均无影响，血红蛋白表型的影响有限。
结论
研究结果支持对患有SCD的青少年进行教育干预以提高过渡技能的必要性。
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