Cagle John G, LaMantia Michael A, Williams Sharon W, Pek Jolynn, Edwards Lloyd J
School of Social Work, University of Maryland, Baltimore, Baltimore, MD, USA
Indiana University Center for Aging Research and Regenstrief Institute, Inc, Indianapolis, IN, USA.
Am J Hosp Palliat Care. 2016 Jul;33(6):574-84. doi: 10.1177/1049909115593936. Epub 2015 Jul 12.
The purpose of this study was to identify predictors of preference for hospice care and explore whether the effect of these predictors on preference for hospice care were moderated by race.
An analysis of the North Carolina AARP End of Life Survey (N = 3035) was conducted using multinomial logistic modeling to identify predictors of preference for hospice care. Response options included yes, no, or don't know.
Fewer black respondents reported a preference for hospice (63.8% vs 79.2% for white respondents, P < .001). While the proportion of black and white respondents expressing a clear preference against hospice was nearly equal (4.5% and 4.0%, respectively), black individuals were nearly twice as likely to report a preference of "don't know" (31.5% vs 16.8%). Gender, race, age, income, knowledge of Medicare coverage of hospice, presence of an advance directive, end-of-life care concerns, and religiosity/spirituality predicted hospice care preference. Religiosity/spirituality however, was moderated by race. Race interacted with religiosity/spirituality in predicting hospice care preference such that religiosity/spirituality promoted hospice care preference among White respondents, but not black respondents.
Uncertainties about hospice among African Americans may contribute to disparities in utilization. Efforts to improve access to hospice should consider pre-existing preferences for end-of-life care and account for the complex demographic, social, and cultural factors that help shape these preferences.
本研究的目的是确定临终关怀偏好的预测因素,并探讨这些预测因素对临终关怀偏好的影响是否因种族而异。
对北卡罗来纳州美国退休人员协会临终调查(N = 3035)进行分析,使用多项逻辑回归模型确定临终关怀偏好的预测因素。回答选项包括是、否或不知道。
报告偏好临终关怀的黑人受访者较少(63.8%,而白人受访者为79.2%,P <.001)。虽然表示明确反对临终关怀的黑人和白人受访者比例几乎相等(分别为4.5%和4.0%),但黑人个体报告“不知道”偏好的可能性几乎是白人的两倍(31.5%对16.8%)。性别、种族、年龄、收入、对医疗保险临终关怀覆盖范围 的了解、是否有预先指示、临终关怀担忧以及宗教信仰/精神信仰预测了临终关怀偏好。然而,宗教信仰/精神信仰受到种族的调节。种族与宗教信仰/精神信仰在预测临终关怀偏好时存在相互作用,即宗教信仰/精神信仰促进了白人受访者对临终关怀的偏好,但对黑人受访者没有影响。
非裔美国人对临终关怀的不确定性可能导致使用差异。改善临终关怀可及性的努力应考虑到对临终关怀的既有偏好,并考虑有助于形成这些偏好的复杂人口、社会和文化因素。