Jonsdottir Helga, Amundadottir Olof R, Gudmundsson Gunnar, Halldorsdottir Bryndis S, Hrafnkelsson Birgir, Ingadottir Thorbjorg Soley, Jonsdottir Rosa, Jonsson Jon Steinar, Sigurjonsdottir Ellen D, Stefansdottir Ingibjorg K
Faculty of Nursing, School of Health Sciences, University of Iceland, Reykjavik, Iceland.
Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.
J Adv Nurs. 2015 Nov;71(11):2634-49. doi: 10.1111/jan.12728. Epub 2015 Jul 21.
To evaluate the effectiveness of a 6-month, partnership-based self-management programme for patients with mild and moderate chronic obstructive pulmonary disease.
Self-management is a widely valued concept used to address contemporary issues of chronic health problems. Findings of self-management programmes for people with chronic obstructive pulmonary disease are inconclusive.
Pragmatic randomized control trial.
Patients, 45-65 years old, with mild and moderate chronic obstructive pulmonary disease were invited with a family member. Experimental group (n = 48) participated in a 6-month, partnership-based self-management programme consisting of: (a) three to four conversations between nurse and patient-family member; (b) 6 months of smoking cessation; and (c) interdisciplinary team-patient-family member group meeting. Control group (n = 52) received usual care. Data were collected at months zero, six and 12. The trial lasted from June 2009-March 2013.
Patients with mild and moderate chronic obstructive pulmonary disease who participated in the partnership-based self-management programme perceived less intrusiveness of the disease and its treatment than patients in the control group. Patients in the experimental group did not have better health-related quality of life, less anxiety or depression, increased physical activity, fewer exacerbations or better smoking status than patients in the control group. Patients in both groups found participation in the research useful and important.
The partnership-based self-management programme had benefits concerning perception of the intrusiveness of chronic obstructive pulmonary disease and its treatment on lifestyles, activities and interests for young patients with the disease in its early stages. High satisfaction in control group, low family attendance and the relatively short treatment period may explain the less than expected benefits of the programme.
评估一项为期6个月的、基于伙伴关系的自我管理计划对轻中度慢性阻塞性肺疾病患者的有效性。
自我管理是一个被广泛重视的概念,用于解决慢性健康问题的当代议题。针对慢性阻塞性肺疾病患者的自我管理计划的研究结果尚无定论。
实用随机对照试验。
邀请年龄在45至65岁之间的轻中度慢性阻塞性肺疾病患者及其一名家庭成员参与。实验组(n = 48)参加一项为期6个月的、基于伙伴关系的自我管理计划,该计划包括:(a)护士与患者-家庭成员之间进行三到四次对话;(b)6个月的戒烟;(c)跨学科团队-患者-家庭成员小组会议。对照组(n = 52)接受常规护理。在第0、6和12个月收集数据。该试验从2009年6月持续至2013年3月。
与对照组患者相比,参与基于伙伴关系的自我管理计划的轻中度慢性阻塞性肺疾病患者认为疾病及其治疗的侵扰性较小。实验组患者在健康相关生活质量、焦虑或抑郁程度降低、身体活动增加、病情加重次数减少或吸烟状况改善方面并不优于对照组患者。两组患者都认为参与该研究是有用且重要的。
基于伙伴关系的自我管理计划对于处于疾病早期阶段的年轻患者在慢性阻塞性肺疾病及其治疗对生活方式、活动和兴趣的侵扰性认知方面具有益处。对照组的高满意度、家庭参与度低以及相对较短的治疗期可能解释了该计划的益处未达预期的原因。