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什么赋予晚期癌症患者生命意义?西班牙、德国和瑞士患者的比较。

What Gives Meaning in Life to Patients With Advanced Cancer? A Comparison Between Spanish, German, and Swiss Patients.

作者信息

Tomás-Sábado Joaquín, Villavicencio-Chávez Christian, Monforte-Royo Cristina, Guerrero-Torrelles Mariona, Fegg Martin Johannes, Balaguer Albert

机构信息

Escola d'Infermeria Gimbernat, Universitat Autònoma de Barcelona, Sant Cugat del Vallès, Barcelona, Spain.

Palliative Care Unit, Institut Català d'Oncologia, L'Hospitalet de Llobregat, Barcelona, Spain; School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Barcelona, Spain.

出版信息

J Pain Symptom Manage. 2015 Dec;50(6):861-6. doi: 10.1016/j.jpainsymman.2015.06.015. Epub 2015 Aug 20.

Abstract

CONTEXT

Meaning in life (MiL) is a construct that varies across individuals, situations, cultures, and countries, and protects against emotional distress at the end of life.

OBJECTIVES

To examine MiL in inpatients with advanced cancer from Barcelona, Spain, and to compare the findings with those obtained in German and Swiss samples.

METHODS

This was a cross-sectional study in which the Schedule for Meaning in Life Evaluation (SMiLE) was administered. The SMiLE asks respondents to list individual areas that give meaning in their lives and then to rate their current level of importance and satisfaction with the listed areas.

RESULTS

A total of 101 inpatients completed the SMiLE. The Index of Satisfaction was 76.8 ± 21.1, the Index of Weighting was 88.0 ± 13.0, and the Index of Weighted Satisfaction was 76.9 ± 20.7. Family, partnership, well-being, and friends were the four areas listed by the largest proportion of Spanish patients. Compared with the German sample, Spanish patients were more likely to list well-being (P < 0.01) and pleasure (P < 0.05) and less likely to list animals/nature, leisure time, and finances (P < 0.01). With respect to their Swiss counterparts, Spanish patients were more likely to list health (P < 0.01) and less likely to list friends, leisure time, animals/nature, and finances (P < 0.01).

CONCLUSION

Differences were identified in the areas of MiL listed by the participants according to country of origin. Compared with their German and Swiss counterparts, the Spanish patients listed more areas involving interpersonal relationships. Interpersonal relationships, at both the family and wider social level, are reported to be the areas that give the greatest MiL to these patients. These aspects, therefore, should be considered when drawing up care plans designed to help patients achieve the maximum possible comfort and quality of life.

摘要

背景

生命意义(MiL)是一个因人而异、因情况、文化和国家而异的概念,它能预防临终时的情绪困扰。

目的

研究西班牙巴塞罗那晚期癌症住院患者的生命意义,并将研究结果与德国和瑞士样本的结果进行比较。

方法

这是一项横断面研究,采用了生命意义评估量表(SMiLE)。SMiLE要求受访者列出赋予其生命意义的个人领域,然后对列出领域的当前重要性水平和满意度进行评分。

结果

共有101名住院患者完成了SMiLE。满意度指数为76.8±21.1,加权指数为88.0±13.0,加权满意度指数为76.9±20.7。家庭、伴侣关系、幸福和朋友是西班牙患者列出比例最高的四个领域。与德国样本相比,西班牙患者更有可能列出幸福(P<0.01)和愉悦(P<0.05),而列出动物/自然、休闲时间和财务的可能性较小(P<0.01)。与瑞士患者相比,西班牙患者更有可能列出健康(P<0.01),而列出朋友、休闲时间、动物/自然和财务的可能性较小(P<0.01)。

结论

根据原籍国,参与者列出的生命意义领域存在差异。与德国和瑞士的同行相比,西班牙患者列出的涉及人际关系的领域更多。据报道,家庭和更广泛社会层面的人际关系是这些患者生命意义最大的领域。因此,在制定旨在帮助患者实现最大舒适度和生活质量的护理计划时,应考虑这些方面。

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